Oh, Radeck?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby cheerleader » Sun Nov 29, 2009 8:46 pm

Glad you're home. Hope and pray the pounding calms down tonight. I'm sure you need your rest...please keep us posted,
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
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Postby mazza » Sun Nov 29, 2009 8:51 pm

Hi Radeck,
Thanks for your words of wisdom. The best we can do is to share our knowledge and keep CCSVI on the MS agenda.
Best wishes for a full and speedy recovery.
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Postby marcstck » Sun Nov 29, 2009 9:29 pm

Rad-wishing you only the best of luck tomorrow, and hoping that the pounding feelings that you're experiencing are only part of your body's reaction to the insults it has suffered.

Wishing you a quick recovery.
Last edited by marcstck on Sun Nov 29, 2009 10:03 pm, edited 1 time in total.
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Postby mrhodes40 » Sun Nov 29, 2009 9:47 pm

Radeck I will be thinking of you tomorrow! I hope it goes well.
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
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Postby zap » Sun Nov 29, 2009 10:10 pm

Good luck man - stay positive, and thanks.
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Postby whyRwehere » Sun Nov 29, 2009 11:14 pm

Wobbly's words are very appropriate here: STAY STRONG!
Somehow we can adapt to so much we thought we couldn't. It's just a lesson. All the best, I mean that.
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Postby CureIous » Sun Nov 29, 2009 11:20 pm

Oh you know you will be back here reporting soon Oliver, but your advice is well taken as a reminder to anyone anywhere for anything medical, be your own best advocate. Easier said than done I know. Will look forward to your further reports. Mark.
RRMS Dx'd 2007, first episode 2004. Bilateral stent placement, 3 on left, 1 stent on right, at Stanford August 2009. Watch my operation video: http://www.youtube.com/watch?v=cwc6QlLVtko, Virtually symptom free since, no relap
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Postby ErikaSlovakia » Mon Nov 30, 2009 1:35 am

radeck wrote:In case this is my last post:

Life is not that easy.
I am so glad you are at home.
Look, my father had ope heart surgery this April, he came home after 11 days. He felt better - the breathing and heart beeting was normal, he did not want to faint anymore, but he was depressed A LOT!

My 11 years old nephew from Vancouver had already his second open heart surgery this July . The first 5 days were hard for him - it was painfull and he was blaming his mother a lot.
His day 10 he was not depressed anymore and he did not have any pain.
I knew very good before my procedure in Poland that it might happend to me. I was informed ba doctors in Slovakia, by Dr. Simka and by Dr. Ludyga as well. I was ready to have it, I was ready to have second procedure, just whatever...

I am very sure you will stay with us for a long time!!!
I am sending you good mood, energy and positive thinking from Slovakia!
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
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Postby kinga » Mon Nov 30, 2009 3:22 am

Radeck,don't even think like that! we all pray for You! and waiting for you here!
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Postby prof8 » Mon Nov 30, 2009 3:28 am

Radeck-- I wish you a troublefree recovery from the unexpected heart surgery. Sending you positive healing vibes.
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Postby AndrewKFletcher » Mon Nov 30, 2009 3:35 am

Keep strong, time is a great healer and on your side now.

Only positive thoughts Radeck and ignore anyone who breaths negativity, surround yourself with positive people and you have plenty here to start with.

Prolonged bed rest prio to and following surgery will give many a pounding head. I remember as a teenager getting our of bed after a week and felt like someone was playing socker with my head.

Speedy recovery

Regards and best wishes

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Postby Algis » Mon Nov 30, 2009 3:38 am

Waiting to see you soon in great spirit and wish you a smooth recovery :)

Good vibes from Taiwan
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Postby gibbledygook » Mon Nov 30, 2009 4:20 am

Radeck, get well soon! I hope you're back after a good rest.
3 years antibiotics, 06/09 bilateral jug stents at C1, 05/11 ballooning of both jug valves, 07/12 stenting of renal vein, azygos & jug valve ballooning,
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Postby MamaGirl » Mon Nov 30, 2009 6:37 am

Radeck, you are a trooper and anyone with MS can fully understand your hopes. Stay strong and know that there are people everywhere who are praying for you!!! GOD bless....
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Postby MaggieMae » Mon Nov 30, 2009 8:51 am

Reading about Radeck brings one of my biggest fears to the surface. For those of you who live close to Stanford, if a problem such as Jeff's or Radeck's appears, you can take a trip back to see Dr. Dake. But, what if you live in the eastern US as we do. What would you do if you noticed a problem such as Radeck did? Would you call Dr. Dake and hope he could refer you to someone in your area? Just thinking of jumping on a plane with a stent floating in your heart. :cry:
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