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PostPosted: Sat Nov 28, 2009 6:55 am 
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Getting to Know You...
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Joined: Thu Jun 18, 2009 3:00 pm
Posts: 24
Location: India-Orissa - Sambalpur
Hi group members,
I am Bibek from India,had several diagnosis since 2003.First PPMS than Aqueductal stenosis in 2004 , Deymelinatory dieses ? Progressive MS in 2003.In your opinion is it looks a case to try out CCSVI angle ?I have gone through the posts in this site and know there are much knowledgeable people out there.In Aug'09 I had a relapse ,the effects of which are still there,my legs are hairless below knee and seems a case of less blood supply.Do write a line or two ,Pleaseeeeee.

My symptoms are:
1.Walking difficulty (Gait,sapsticity)
2.BalanceProblem ( Had vertigo twice ,long before MS diagnosis)
3.Bladder incontinence
4.Bowel Dysfunction
5.Fatigue
6.Heat intolerance ( ...)


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PostPosted: Sat Nov 28, 2009 7:41 am 
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Joined: Thu Oct 15, 2009 3:00 pm
Posts: 1273
Location: St. Louis, Missouri
Hi Bibek... First of all read the two stickys on this board :

CCSVI - Just the facts ma'am

CCSVI research here

Everyones case is worth looking into. But the first thing we need to do is educate ourselves. Since there are only a few places in the world able to perform the doppler sonography diagnostic procedure, and only a few places that can do the Liberation procedures, you can help by bringing CCSVI to the attention of your neurologist and MS research centers in India. Become an advocate for your own health. Most of the CCSVI information is available on this board... so read away !!

Maybe in a few months there will be greater acceptance of CCSVI in the medical and scientific community. Maybe you can help this happen.

ozark


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