Continue using DMDs after procedure...?

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Will you continue to use DMDs after ballooning/stent?

Not sure
Total votes : 6

Continue using DMDs after procedure...?

Postby ikulo » Sat Nov 28, 2009 10:50 am

Hey all,

those of you who have had the procedure (stent or balloon) or are planning on getting it, are you planning on staying on your current DMDs (copaxone, rebif, avonex, betaseron, etc.)? What are everyone's thoughts on this?

I added a poll, but I'd like to hear why or why not,. I'm just curious about my future options if I decide to get this done - weigh costs/benefits - but wanted everyone's experiences, thoughts, advice.
User avatar
Family Elder
Posts: 444
Joined: Tue Aug 04, 2009 3:00 pm
Location: colorado


Postby ErikaSlovakia » Sat Nov 28, 2009 10:57 am

I have never been on DMDs and I do not plan to start with them.
I have been on LDN for a year and I continue with LDN aftr the procedure.
Aug. 7, 09 Doppler Ultras. in Poland, left Jugul. valve problem, RRMS since 1996, now SPMS,
- Nov.3,09: one stent in the left jug. vein in Katowice, Poland, LDN, never on DMDs
- Jan. 19, 11: control venography in Katowice - negative but I feel worse
Family Elder
Posts: 1125
Joined: Wed Jul 29, 2009 3:00 pm
Location: Slovakia, Europe

Postby wobbly » Sat Nov 28, 2009 2:33 pm

going off tysabri soon / then switching 2 copaxone most likely / he s [dr]\ getting afraid of it/ 32 treatments that is in the range of pml/ the risk seems harder than they thought / MS SUX i wish i could get balloned again :?: :?:
User avatar
Family Member
Posts: 73
Joined: Thu Jan 01, 2009 4:00 pm

Return to Chronic Cerebrospinal Venous Insufficiency (CCSVI)


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service