Back from Poland
Back from Poland
Wow, words cant express what a wonderful experience Poland was, or my words cant, but here goes.
It turns out I didn't have stenosis but one jugular had a valve that was upside down, the other jugular had a membrane across it.
Both problems were congenital and have been cleared using balloons rather than stents. My Azygous vein was O.K.
Already my voice is clear and strong, last night there were none of the sleep interrupting spasms and my bladder has stopped going into spasm.
Despite having little sleep my mind is much clearer and faster.
All the team in Poland were very nice and professional too. I cannot fault them.
I will post any more improvements as they occur.
Anyone going soon, there's no need to be apprehensive, this is the best thing that has ever happened to me!
It turns out I didn't have stenosis but one jugular had a valve that was upside down, the other jugular had a membrane across it.
Both problems were congenital and have been cleared using balloons rather than stents. My Azygous vein was O.K.
Already my voice is clear and strong, last night there were none of the sleep interrupting spasms and my bladder has stopped going into spasm.
Despite having little sleep my mind is much clearer and faster.
All the team in Poland were very nice and professional too. I cannot fault them.
I will post any more improvements as they occur.
Anyone going soon, there's no need to be apprehensive, this is the best thing that has ever happened to me!
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Congratulations! That is wonderful to hear!
I noticed from other posts that you have PPMS. Did Dr. Simka say anything about a possible different presentation of stenosis between RRMS and PPMS. I guess what I'm trying to ask is, did he image your spinal column as well?
I hope that your improvements continue!
I noticed from other posts that you have PPMS. Did Dr. Simka say anything about a possible different presentation of stenosis between RRMS and PPMS. I guess what I'm trying to ask is, did he image your spinal column as well?
I hope that your improvements continue!
Congrats wonky1! I'm glad balloon treatment could fix the upside down valve problem, that surprises me. But then I know nothing of such things.
It seems odd that Simka in the early going is finding valve problems but hardly any of Dake's patients have reported that. And then there's Zamboni's azygos.
It seems odd that Simka in the early going is finding valve problems but hardly any of Dake's patients have reported that. And then there's Zamboni's azygos.
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Simply brilliant news Wonky, here’s to a bucking the trend of MS progression and to all of the improvements sure to head your way.
All the best,
Mark.
All the best,
Mark.
Mutley goes to Poland 1st symptom was Optic Neuritis in 1998, DX RRMS Jan 2001, DX SPMS 2007. Last EDSS by doctor 7.5
Wow I am so happy for your good result at this stage,
Wonky can you please make a tracking entry if you haven't already?
Wonky can you please make a tracking entry if you haven't already?
I'm not offering medical advice, I am just a patient too! Talk to your doctor about what is best for you...
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
http://www.thisisms.com/ftopic-7318-0.html This is my regimen thread
http://www.ccsvibook.com Read my book published by McFarland Health topics
Dear Wonky,
congratulations!!
I'm glad you are doing so well.
I'll have an MRV in Poland the tenth of December, the operation the fifteenth.
Do you have problems with injecting the clexane? I tried to buy the auto-injector here in the Netherlands but it is not sold here.
Do you know if they sell it in Poland?
thanks!
congratulations!!
I'm glad you are doing so well.
I'll have an MRV in Poland the tenth of December, the operation the fifteenth.
Do you have problems with injecting the clexane? I tried to buy the auto-injector here in the Netherlands but it is not sold here.
Do you know if they sell it in Poland?
thanks!
Last edited by Sesj on Tue Dec 01, 2009 6:48 am, edited 1 time in total.
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