This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Thu May 23, 2013 3:32 am

View unanswered posts | View active topics


Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 3 of 3
  [ 37 posts ]  Go to page Previous  1, 2, 3
  Print view Previous topic | Next topic 
Author Message
Johnson
 Post subject:
PostPosted: Fri Dec 11, 2009 4:26 pm 
Offline
Family Elder
User avatar

Joined: Tue Dec 01, 2009 4:00 pm
Posts: 979
Location: Ucluluet, BC
I am so glad to amuse. I can laugh, when things ain't funny...

Mark - I swear that he said that!

_________________
My name is not really Johnson. MSed up since 1993
Top
 Profile  
 
jay123
 Post subject:
PostPosted: Fri Dec 11, 2009 5:33 pm 
Offline
Family Elder
User avatar

Joined: Mon Sep 21, 2009 3:00 pm
Posts: 374
I'm happy I'm a code blue at least!
Top
 Profile  
 
CRHInv
 Post subject:
PostPosted: Fri Dec 11, 2009 6:20 pm 
Offline
Family Elder
User avatar

Joined: Sun Aug 30, 2009 3:00 pm
Posts: 402
Location: Chandler, AZ
CureIous wrote:
I mean obviously a big part of that was improved blood flow, toss in the IV steroids and a banana bag as they call them, and even with a miserable sleep I felt GREAT in the morning.


Did Dr. Dake give you IV steriods after the procedure? I didn't know about this, or am I just reading this wrong?

TIA
Beth

_________________
dx 4/09 * Stanford appointment 11/09/09 * One stent left, low jugular 11/10/09!<br />One year from treatment, I have my life back.  Placebo schmebo.
Top
 Profile  
 
bibliotekaren
 Post subject:
PostPosted: Fri Dec 11, 2009 8:00 pm 
Offline
Family Member
User avatar

Joined: Fri Jun 05, 2009 3:00 pm
Posts: 75
Location: US
Hey Prof8 - a mixed congrats on the pancake vein find!

prof8 wrote:
... because it's not a trial for MS per se. It's a vascular trial to see what happens if you fix stenosis using stents in the veins.

This is the first that I heard this -- I have hope again! Alex told me I'm at the top of the chart pile but when I heard clinical trial I figured I'd be disqualified -- am atypical non-clinically definite and have had past brain trauma.

About the different specialities of docs...in the last two years I've seen a stunning amount of docs. The Rheumatologist and now, my primary Internist, are more willing to look outside the box than the Neurologists. A very funny bunch they are, especially the MS specialists. It's as if the unknown/unpredictable nature of MS has instilled a deep sense of futility in them. So, they are wary of deviating from a path defined by outside standards.

Johnson, that was an incredible vignette. OMG, if those Gaza Strips folks can keep it together what's your problem? Wow.

Again, congrats Prof and thanks for sharing this info about the study.

Donna
Top
 Profile  
 
wishwinewasrx
 Post subject:
PostPosted: Fri Dec 11, 2009 8:28 pm 
Offline
Newbie
User avatar

Joined: Thu Dec 10, 2009 4:00 pm
Posts: 1
I'm a newbie on this site - but dx in 98....and live 15 minutes away from Stanford. Asked my (stanford) neuro for a referral to dr. dake and have had no response. - does any one know if dr. dake is accepting new patients? must i have a referral?

I have only begun to start the process of making *this* happen and am aleady extremly fusterated. Can only imagine what the rest of you (who haven't had the procedure) are feeling....

katrina
Top
 Profile  
 
EnjoyingTheRide
 Post subject:
PostPosted: Sat Dec 12, 2009 5:12 am 
Offline
Family Member
User avatar

Joined: Thu Nov 12, 2009 4:00 pm
Posts: 75
Location: Maine
wishwinewasrx wrote:
- does any one know if dr. dake is accepting new patients? must i have a referral?


Dr. Dake is not accepting new patients at this time for CCSVI. He is setting up a study that will commence early in 2010. At that time he'll start taking new patients again.

_________________
Mitch
Please visit my blog at www.enjoyingtheride.com
Top
 Profile  
 
jay123
 Post subject:
PostPosted: Sat Dec 12, 2009 6:58 am 
Offline
Family Elder
User avatar

Joined: Mon Sep 21, 2009 3:00 pm
Posts: 374
and good luck getting a Stanford neuro to support you (sic), I'd be prepared to look for a new MS doctor if you get involved!
Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 3 of 3
  [ 37 posts ]  Go to page Previous  1, 2, 3

Board index » Treatments » Chronic Cerebrospinal Venous Insufficiency (CCSVI)

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. Re: My test results and visit with Dr. M.DAKE STANFORD

seeva

1

1271

Tue Dec 22, 2009 1:45 am

CureOrBust View the latest post

There are no new unread posts for this topic. MRI & MRV Test Results

jjmagpin

5

2369

Tue Feb 16, 2010 12:55 pm

Mutley View the latest post

There are no new unread posts for this topic. got test results back

robbie

7

1150

Wed Apr 27, 2011 7:55 am

Cece View the latest post

There are no new unread posts for this topic. Finally objective test results pre and post venoplasty-fMRI

MegansMom

5

931

Wed Jun 15, 2011 8:15 am

Cece View the latest post

This topic is locked, you cannot edit posts or make further replies. Newbies Please Visit here first

[ Go to pageGo to page: 1, 2 ]

LR1234

24

21473

Wed Jan 27, 2010 5:44 am

jimmylegs View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: