bohemianbill wrote:Accept my apology, for the record I had not known of this site TIMS,CCSVI or current MS research. My wife and I back in the early nineties did everything we could, moved to a new city (ottawa) to be on any type of study. our attitude was be proactive instead of reactive. But after years of hope it tends fade as this disease progresses. (you begin to accept your lot in life) That one drug/study we turned our lives up side down for as done little if anything fo MS patients. My point being is we became jaded to the current MS research. Than i sat & watched the CTV W5 "The Liberation Treatment" CCSVI. At the end I had tears streaming down my face. It was as if maybe just maybe there was not going to be another sequel to "nightmare on elm street" We both maybe alive to see the end or at least the beginning of the end of MS. It just made so much sense!
Laurie & Bill
--keep the heat to the feet--
And there you have it, someone with experience, jaded by years of false hopes being dashed, so many sacrifices made for the cause of science, has an initial reaction of "oh great here we go again", which then turns ever so slightly to "well if it's that good it won't last, I've seen the $$ involved on the other side", and finally, after seeing that this really IS too big to quash at this point, comes to a place of active and energetic participation.
The problem is, that what is being reported, then commented on, then regurgitated all across the 'osphere, is the initial reactions of people who are jaded, befuddled, uneducated on the +/-'s of the theory, and current state of the art, who then get all rolled up neatly into a breakfast burrito and eaten alive.
I've got TWO that are in that very spot right now. Not conspiracy people, but exactly the opposite, all they see is the ANTI-conspiracy talk, assume that the "movement" is rife with that talk, and spend all their time on that and zero on research, and couldn't even tell you the basic theory itself.
So there should always be room to allow people to grow. Unfortunately some slap a label on you at first blush, because it's easier to marginialize and ignore than engage. All about the comfort zone. Why make it hard right? Go the easy route.