Updates since 10/19 surgery ~ Rhonda

A forum to discuss Chronic Cerebrospinal Venous Insufficiency and its relationship to Multiple Sclerosis.

Postby markus77 » Fri Jan 22, 2010 4:38 pm

Rhonda you make my journey even more exciting.....

dx 1989, spms
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Postby Johnson » Fri Jan 22, 2010 4:48 pm

Thanks for the very heartening update. I keep telling my three year old that things will be better this summer (Poland sometime in May). It's harder on the kids than on us in a lot of ways, I think.

I'm sorry about the vaccine thing, but not at all surprised. That was a scam, and a lot paid for it with their health. The neuro at the MS clinic told me once to not be vaccinated for anything, as it could cause exacerbation of symptoms. His actual word was "dangerous". No worries there, I long suspected that a Hep. B vaccine, or Yellow Fever, or Polio... was the "locking" trigger for my own MS. My son has never been vaccinated for anything. Good diet, zinc, echinacea, and no sickness for years.
My name is not really Johnson. MSed up since 1993
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Postby magoo » Fri Jan 22, 2010 5:35 pm

Markus and Johnson,
I can't wait to read YOUR stories post treatment!!!! Good Luck and thanks!
Treated by Dake 10/19/09, McGuckin 4/25/11 and 3/9/12- blockages in both IJVs, azy, L-iliac, L-renal veins. CCSVI changed my life and disease.
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Postby prof8 » Fri Jan 22, 2010 10:04 pm

Hi Rhonda,

I've been following your story from the beginning. I just wanted to say how happy and excited I am for you and your family. It's an inspiring story seeing you improve over the weeks. I'm hoping to be liberated soon too in my own city.

Take good care!

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Postby SandyK » Fri Jan 22, 2010 10:21 pm

Rhonda, the last time I went sledding was over 10 years ago. I look forward to those things so much. Thank you for your update.
Diagnosed 1994, Self EDSS is 6.5
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