This Is MS Multiple Sclerosis Community: Knowledge & Support

[ngocky]

Hello everyone


This is my first time starting a thread so fingers crossed this works. Its a great website and very informative so thank you all.

My husband is 35 and has PPMS and was diagnosed Jan 2008. We are very interested in CCSVI and so far have had no luck with any doctors in the UK so unfortunately have had to resort looking abroad for treatment.

We of course have contacted Dr Simka, but know he is extremely busy busy and contacted Dr Kostecki too a couple of weeks ago.

I was wondering if anybody has contacted Dr Kostecki or heard anything from him yet? He is probably inundated with requests as well I suppose. Just wondering.

Thanks guys

Nx

[pinksapphire]

Hi,
I received an email on Sun, February 14, 2010.....this is all I received.



please wait for a details

Sincerely
Jacek Kostecki



I am on the waiting list for April in Sophia Bulgaria with Dr Grozdinski. I dont know how long Kostecki needs to get ready.

[ngocky]

Thats great you got an email from Dr Kostecki. That's more than what we got. I telephoned him couple of weeks ago and he told us that its still an experimental procedure and that he would probably be ready end of March.

He seems to be putting the date back because we telephoned him end of Jan and he said he was getting facilities etc and should be mid feb. Its just taking him a while to get sorted that's all. I am keeping everything crossed.

Good luck with Dr Grozdinski. We are on the list for June.

N xxx