my fiance was Dx april3rd. we r both in the restaraunt business and to make more profit they must spend as little as posible. restaruants r actually really had to make profitable. anyways, her company is a franchise as opposed to the national company and their best offered plan is not even a real insurance plan...its more a wellness plan. $5k max a year payout on mdical services (about gone from the Dx) and 100% co-pay for injectibles. (see adjanimals post above...she does not even make that much a year on her taxes) Insurance, even if i had it, at my work is about the same.
i can honestly say i have spent close to 100hrs pouring over laws and rules etc trying to find a way to get her coverage, applying, arguing, sweet talking (had one under writer crying she was upset for carrie). the only way someone with MS in the USA can be make an insurance comany extend coverage is through work. State to state is different but florida is not very helpful to say it nice hehe. All the hoops in volved we were looking at anywhere from 6 month to a year before i could guarantee coverage. so in a situation where she needs to not have stress that is all we kept running into.
ok, the reason i bringing all this up. Shared Solutions have been AMAZING!! She was Dx on a tuesday, THEY called her on wednesday! of everything she loves then as they have been the ones who have worked to help take some of the overwhelming ness of this off of her. AND, they got us with NORD. we heard all kinds of things about NORD good and bad. part of all the hoops we were jumping through included theirs hehe. they got our app on april 30th and they called this week..AWARDING carrie a yr of her copaxone!!!!!!!!!!!!!!!!!!! THANK GOD for them. medicaid not even let us know anything at all yet.
what i love so much about this is that we now have that 6months to a year to get everything organized (prolly me change jobs and marry her) so that we do not need NORD again.
I am very glad to hear that u all have good coverage!! i did spend a lot of time researching insurance though and if there is anything someone may have a question about please let me know. i gots tons of links and info i can forwrd