Lipoatrophy Survey

A board to discuss the Multiple Sclerosis modifying drug Copaxone

Postby Wonderfulworld » Fri Jun 06, 2008 1:20 pm

The pictures are interesting. My lipoatrophy would be as bad as that of Cases 4 and 5 alright and I see that there was advise to stop Copaxone. I have not been advised to stop it. Without Copaxone I had relapse after relapse, 4 per year.

Has anyone tried anything to alleviate Lipoatrophy?

I am trying keloid scar silicone dressings at the moment, just to see if they help it, but don't have much hope....
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Postby urchin » Sun Jun 15, 2008 2:01 pm

I'm female, 30, was on Copaxone for almost a year and a half and had severe lipoatrophy by the time I switched to another DMD.
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Postby VodooDoll » Tue Jul 15, 2008 12:04 pm

Female 50 on Copaxone for 13 months, weight 135 lbs. Slight Lipo in both thighs and back on one arm. Neuro nurse said it should improve with in time, since I wasnt on it that long.
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Postby RedSonja » Thu Jul 17, 2008 3:25 am

I am 51 and female, and, like the women in the article, didn't know this was a problem till I heard about it. Mostly I inject in thighs and buttocks, and it really is a bit bumpy these days. I have never looked like Madonna, so I don't care at all what I look like in a swimsuit - at my age you give up on bikinis. Cop allows me to live a normal life, so I will carry on injecting till they develop something better.

I will, however, follow the advice in the article, and take more care in rotating sites.

Actually, if this stuff is destroying fat I want more of it, maybe they could develop a spray for me so I could apply it evenly...
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Postby Tekla » Thu Aug 14, 2008 9:21 pm

Female, age 42, have been on Copaxone since 10/2007 after MRI showed increased lesion size.

No significant progression or flare in that time period. No IPIR. No issues with lipoatrophy. I use a home-made rotation chart that allows me to only use a site 1x/month.

Will have an MRI in September and see how it compares to the one done last fall. Copaxone is an easy med for me to "use as directed".
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