I hate this diesase...

A forum to talk about the general challenges of daily life with MS.

I hate this diesase...

Postby Baylor » Mon May 17, 2010 4:35 pm

My dh was diagnosed 2 weeks after I found out I was pregnant with my third child. Dh is 42 and has had his diagnosis for 2 years now almost 3. Tonight he is getting an MRI because his symptoms are getting worse.
This is just breaking me. No one can understand... It just is a nightmare.
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Postby lyndacarol » Mon May 17, 2010 6:22 pm

Baylor -- You are half right. This disease IS a nightmare! But we people here at this website DO understand. We welcome you, all your questions, and all your expressions of frustration, fears, etc. Most of us have been there before you.

MS is not an easy journey; somehow I have the feeling that you have the courage to deal with it with your husband. The fact that you can deal with three small children is evidence of your abilities. In my case, I have the disease; my husband is with me every step of the way -- his faithful support is more valuable than words can say.

Historically, the prospect for this disease has been bleak; but today there is more hope. I am confident that help is on the way. In the meantime, most of us are trying to stay in the best possible physical condition with diet and exercise -- and reading and educating ourselves to be in the best mental condition.
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Postby Baylor » Tue May 18, 2010 11:40 am

Thanks so much. I appreciate that. My dh has been through so much in his life and this is just the icing on the yuck cake...

He has RRMS and has been doing okay since his diagnosis but lately has more and different symptoms. He is having his MRI's this week. One last night and one wednesday. I also found the MS center in Philadelphia. They can not see us til Oct. though.

I have days where I want to kick ms's arse and some days where it feels it is kicking mine.
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Postby happytown » Sun May 30, 2010 5:29 pm

Baylor I totally understand.
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Postby L » Thu Jun 24, 2010 8:03 am

I hated it for a few months, then I didn't let it bother me for a few years, and now I hate it again. It has become unbearable. But, for those few years in between, I was really, genuinely happy.

Hopefully you'll enter that phase in a short while, the period of just getting on with life. Hopefully it may last for a long, long time. Hopefully things may get better.

Like I always say, look into (very) high D3 supplements and the possibility of CCSVI testing and treatment.
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Postby carolew » Fri Jun 25, 2010 11:22 am

Dear Baylor, sometimes it is worse when you are a bystander looking at us.
I hope your husband finds the strength to keep trucking along and to concentrate on the things he CAN do and not the opposite.
This disease is like a snake, catches you by surprise with every donwturn it has.
Hopefully he has found a neurologist that he trusts and will take the advice that is given to him.
Take care of you too, not just him.
Good luck, we all need it, Carole
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