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Hello Everyone, thank you all for all the great posts and wisdom you have all shared with me on this forum.
I wanted to provide everyone with a little update on my situation and hope it may be able to help someone else that is going through the nightmare I have been going through just like many of you.
After all the neurologists I saw in Southern California said we don't know what else to test you for and now it's just a matter of waiting to make a diagnosis of MS when we "see" a physical disability because nothing is testing postively for MS.
I will try to make this long story short...
My health continued to decline, in that my body continued to weaken and I lost feeling in just about everything and the heat intolerance was making things even more intolerable.
Well because the Neuro's in Southern California couldn't make a diagnosis, my lovely wife of 20 years decided I was faking it and filed for divorce throwing me out of my home. I had no where to go, I had no energy to try to move any of my things so I just drove to where I could get with family up in the Portland Oregon area.
As soon as I arrived I made an appointment with the first neuro I could find on our health insurance website and I made an appointment.
The next week, I saw him and as usual went through the entire interview process all over again and this time I had all my records with me. He took my records and said he would see me next week. When I returned for my second appointment with him he said, have your heard of a condition called, "Peripheral Autonomic Neuropathy?"
Well of course I haven't and he described that the symptoms of this condition are similar to what I was experiencing. So I was referred to "Oregon Health Science Uniiversity" or OHSU. I was sent to the Neuromuscular specialists there to test for this condition.
While waiting for the tests at OHSU I'm telling my sister what this doctor was suspecting as a diagnosis and frankly I was a little worried we may be going off on the wrong path but I had nothing to lose at this point!
My sister called me back within a day or two to let me know that there's a B12 deficiency factor in causes of peripheral neuropathy's. So without to much hesitation, I went and begged my primary doc for a shot of B12 and she agreed to do it and I was completly amazed at how that one shot made me feel a whole lot better! Without going into the long story here again, I have injected myself over 23 times of 1ml per injection over the course of about 46 days and have experienced a significant improvement in many of my symptoms.
I went in for my results today and they confirmed I have what's called an "Idiopathic Small Fiber Neuropathy"
I still have to continue my diagnoses to find the cause. So I have no idea what I'm looking at in the future.
I hope my journey has been able to help anyone that comes across this that has similar problems.
Thank you all again and take Care
Ed
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