Down...sad... and confuse

A forum to talk about the general challenges of daily life with MS.

Down...sad... and confuse

Postby siren » Mon Oct 18, 2010 6:42 am

MS at work again :( . Just got result from my latest MRI today lesions are found and now my neuro wants me to change my treament. I am currently on Rebif for the last 6 years and I'm getting more then 3 relapz each year. My latest relapse weakens my left side of my body making me difficult to move around but I have since recover. My Neuro wants me to decide to switch to either, Betaferon, Copaxone, Tysbri or Mitoxantrone . Any advice anyone on which treatment I should switch to? MS sucks! Everytime I tell myself to be strong but it keeps pulling me down.
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Postby jimmylegs » Mon Oct 18, 2010 6:57 am

siren, have you ever had your nutritional status measured to see if you match the 'ms profile' or are already in line with 'healthy controls'?
odd sx? no dx? check w/ dietitian
99% don't meet these. meds/lifestyle can affect levels
status can be low in ms & other cond'ns
'but my results are normal'. typical panels don't test all
deficits occur in 'normal' range
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Postby Algis » Mon Oct 18, 2010 10:59 pm

Poor Dear...

Mitoxantrone has done marvels on me; but only limited due to its toxicity I could not pursue the treatment.

Maybe it is long enough to have another better solution? But I don't want to suggest anything; except LDN; another one which did so well on me, and dirt cheap.

Hang on; we'll get there. My best to you :)
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Postby stillfighting » Sat Nov 27, 2010 10:45 pm

Can't help but ask if your dr gave Gilenya as an option, the new oral?
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