and seen there MS symptoms become worse?
i have had a pressure sore on my natal cleft/coccyx for about 18 months, and when it first appeared and since then my MS symptoms (walkin/legs strength and bladder frequency/control) have worsened - (photo of lesion: http://tinypic.com/r/2nteaz6/6
- in these 18 months my E.D.S.S has gone from 5.5 to 6.5 so am seated most of the day.
bare in mind i have been taking LDN for the past 5 years which had stopped the MS progression (SPMS), well until this sore developed
but for the past 8 months i have also changed from a western diet to the Wahls diet so this could be contributing so am very thin now, having gone from 135lbs to 115lbs, 5' 11" male.
Recently i was told by a junior neurologist that it is unlikely to have caused worsening due to the pressure sore/lesion, as it is a few inches from my spine,
but i spoke to a MS nurse specialist who was confident my worsening was due to the pressure sore and its location, as she deals with many MS patient who get pressure sores.
So for the last 6 months i have been sitting on a firm pressure relieving cushion, which was given to me from the district ed nurses - standard cushion they give out (http://tinypic.com/r/ehztjp/6
so as this pressure relieving cushion is uncomfortable and isn't helping i want to buy a better one, but which ou t of these would be best for my coccyx sore:http://www.essentialaids.com/comfort/pr ... hions.html
also i need to start using gel medicated dressings as currentl y jus tuse padded plasters to protect the wound - as i am ve ry slim, so little body fat around the sore
is either of thee two dressings helpful:hydrocolloid dressings
– these contain a special gel that encourages the growth of new skin cells in the ulcer while keeping dry the surrounding healthy area of skinalginate dressings
– these are made from seaweed and contain sodium and calcium, which are known to speed up the healing process
Has any other MS'ers here had a pressure ulcer/sore near/on there coccyx/natal cleft?
did your MS symptoms worsen when you developed the sore?
how long did it take the sore to heal? did your MS symptoms return to there state before developing the sore, once it healed?