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 Post subject: living
PostPosted: Thu Jun 29, 2006 12:42 am 
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Joined: Sun Nov 13, 2005 4:00 pm
Posts: 15
Hi everybody, there´s a new forum here and I can share with you my "living problem". My boyfriend and me want to leave together (perhaps for all life : and we are in age to wonder about our together living.

But there´s my disease, you know. And I think I should take into account my perhaps disability in future. I know maybe it never come, but there´s a probability.

Does anybody solve similar problem as me? To live in our house (which is heired after my grandparents, but with stairs) or we should want another living without stairs and another barriers.

Bye from Prague Jane


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PostPosted: Thu Jun 29, 2006 5:36 am 
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Posts: 7626
hi there jana, i am new to this disease so i only have one relapse to relate.

i live in a house that has three levels - basement, main floor, and upstairs. when i had my attack i gave up stairs for months unless absolutely necessary.

it wasn't that hard adjusting my life to living on one floor while i had to. i slept on the couch but could have set up a day bed off the kitchen if i had wanted to.

but, as i recovered, i kept trying more and more. eventually one day, i thought to myself "i'm going to run down these stairs" and i didn't the first time - but the next time, i did. my point is, the stairs being there, i had to work at getting back to using them.

i would say, live in the now as much as you can. use your abilities for as long as you can! and worry about moving to a one level barrier-free home if and when you have to. just my opinion!

i hope u and your boyfriend have wonderful years together :D


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 Post subject: hey
PostPosted: Fri Jun 30, 2006 1:20 pm 
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Joined: Mon Nov 07, 2005 4:00 pm
Posts: 285
Location: wisconsin
i have live where i have stairs to get down to my room and i use that for my exersice for my legs so they stay strong..yes it might take me a few to get down them and up in the morning but i keep doing it...but i think it ends up being to each person where they should live with this diease..i look at it like this i aint in a whellchair yet so i am going to keep staying where i am at...i am sure at one point in time i will have to be on a one level house but right now i just dont think about that part..just take it one mintue at atime one day at a time ect....but am sure you will have a wonderful life no matter where you live..

chris


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