Jennifer has a doc appt today. Some blood was drawn while she was in the hospital and a few tests were run. Only one result came back while we were there. No thyroid problem. I'm going to get this wrong but the nurse said there are like 12(?) clotting factors. They were testing some or all of those, not sure which. The also tested for lupus. Unsure if more. I asked about Hughes and the nurse did not know anything about it. They are saying she may be on the thinners forever, as there is no "cure" for clotting disorders- you just have to keep the blood thin.
There is the smallest chance that it is a pregnancy issue only. My greatest hope is that the baby laid on the vein or pushed something into it and cut off the flow- causing a clot. She has pain there for a while, and yet the doc said these clots can happen really fast. Wouldn't that be awesome?
My second desire would be that an aspirin a day will take care of it once the baby is here.
I haven't even read about the lovenox side effects. I have had no time really, and not much desire. With MS, we have the luxury of knowing it isn't gonna kill us- at least for a while. More time to question and doubt and experiment. With the blood clot it was kind of like- do whatever- just keep my baby and grandbaby alive!
Once they figure out the underlying issue we can look at alternative treatments. Jennifer will have to want to, though. She'll be 23 this month.
We'll also need good help if she tries non-pharm. No room for mistakes. Any input is appreciated.
Cheer, I have read "antiphospholid antibodies" here before, but not sure what that is. Can you explain?
Loobie, it was my baby- my daughter- not my DIL. Wouldn't have made much diff in that I'd have been there if needed, but in my heart- well, my heart was breaking. She is me and I am she. Ya' know? (Only she is much more precious!) I asked the doppler lady how many clots she had and behind Jennifer's head she mouthed with a concerned look "a lot". Jennifer asked "a lot?" I laughed and told the lady- sorry, we read each other's minds. lol. We really do.
I'll post what I am told today. From an MS perspective, it'll be interesting to know what is going on in her blood. From a mom's perspective, it is dire.
One nurse or doc told us her platelets were a little high. Doc said 400,000- not really high. Mom's were over a million for a while.
Thanks for listening. Friends and family were awesome, but this is where I learn. So much of what was discussed at the hospital was the same as what we talk about here. Knew I would get some "back" or support if I posted.
And Lew, you'll be back from sunny CA before you know it. You know time keeps moving. Don't stress. Just enjoy these days as the LAST days you'll have blocked jugs. Celebrate every moment, knowing that help is just around the corner. I can't wait to hear all the good things that are coming. And when you are better- we have to do that Reds game!