Crowdsourcing Clinical Trials

A board to discuss future MS therapies in early stage (Phase I or II) trials.

Crowdsourcing Clinical Trials

Postby Jimpsull » Fri Jun 07, 2013 9:04 pm ... dsourcing/

This concept gives new hope to the thought that therapies that cannot be patented could still gain the statistically significant status needed to be accepted by the medical community.

There is a wealth of anecdotal data supporting things like:

Wheldon Protocol (ABX antibiotic regimens)
Procarin / histamine (Prokarin)
Low Dose Naltrexone (LDN)
Swank diet & supplement regimen

But these potentially life-altering therapies aren't even mentioned by doctors (normally) because there haven't been (and won't likely be) any multimillion dollar clinical trials to prove statistical significance. By setting the precedent for crowdsourcing clinical trials, Transparency Life Sciences is lowering the barrier to entry, providing hope for therapies that don't have billion dollar potential (which are currently neglected).
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Re: Crowdsourcing Clinical Trials

Postby Rayboy » Fri Jun 07, 2013 10:42 pm

Thank you, Jumspull. I totally agree that crowdsourcing is the future for us, if we want to take our decisions on treatments based on the scientific method and not on anecdotic cases. Please check this study published this week by Dr. Jelinek et al. on the use of Omega3 supplements or fish oil. It is based on data entered via 2.0 platforms, and not on a controlled and expensive (millions of $) clinical trial, but nonetheless reliable from my point of view. At the end of the day nutraceuticals considered in this kind of web-based questionnaires can do you little harm, so it is worthwhile to give it a try.

From my point of view, the next step would be to analyze multi-supplements data, based on many individuals experiences who would enter the data in such a web-based platform. I am a design engineer and am familiar with design of experiments, so I know this could have important benefits for us.
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