Hi all, Just wondering if anyone is in the same position as me.
I am considering switching from gilenya to bg12.
I have been on gilenya for 8 months.
Prior to this I was on tysabri for 14/15 months, but came back JC+.
Prior to that, had been on coax one for over a year, and before that, beta freon for several years.
I was diagnosed with MS in 1991 (22 years ago!)
The reason my neuro is thinking of switching is because my last MRI, in July this year showed 4 New lesions, 2 of them enhancing.
I did have a major flare up in between stopping tysabri and starting gilenya ( 4 months after stopping tysabri). It was a full on flare, nothing like I'd had before, so I guess this was the post tysabri "bloom")
I am worried! And am not sure what to do....give gilenya a bit longer to work or jump in with first takers for bg12? Is anyone else in this position.
I live in australia, so cost isn't a big issue. both tysabri and gilenya are on the govt subsidised program here (PBS)' but not yet bg12, however the drug company is picking up the tab until it is.
I haven't found any studies on people in my situation, trying different new drugs, one after the other, for ms. Would appreciate anyone's thoughts.