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PostPosted: Thu Apr 05, 2007 4:44 pm 
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Location: suburb of Chicago, IL USA
Totally agree with everything that's been said.

Dignan said:
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I can just imagine a lot of neuro's saying to their patients, "If you're doing well on CRAB X, maybe you should stick with it since we have 15-20 years of data on its side effects. Wait a while to see what the safety profile of this new med looks like after a couple of years."


This is exactly the way my neuro sounded when I even asked about oral medications. I really don't care though because as I tell my family-he's not God. I think I do more research than he does. I am currently doing okay on Rebif but I absolutely hate the injections. It's not just the pain and side effects, it's the total interruption of my life. I don't want to sound whiny because I know we're lucky to have any medications available. I just think that being able to take a pill at any time of the day with no big production would make having MS a little less horrible for me. If they come out with an oral medication that is even as effective as the CRABs, I want that chance to make up my own mind. Even if that means going to a new neuro.


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PostPosted: Thu Apr 05, 2007 7:40 pm 
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Lyon wrote:
at that point it will be time to let our doctors know that they are the employees and we are the boss
and we got da bat! :twisted:


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PostPosted: Sun Apr 08, 2007 4:36 pm 
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CureOrBust wrote:
and we got da bat! :twisted:
Whoa there big guy!! What if the oral medication released in 2009 happens to be encapsulated parasite eggs?

Possibly that would cause your bat to droop a little? :lol:

Bob


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PostPosted: Wed Apr 18, 2007 3:38 pm 
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viper498 wrote:
It would be really sad if a drug like FTY720 wouldn't emerge in the market until 2020, especially considering that it is basically just another "band-aid" drug, not a definite fix by any means.

Brock


I agree. That's like the one thing I stay optimistic about. I would really be sad


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