Have MS or know someone with MS?

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Do you think fundraising for the MS Society is a good idea?

Of course, it takes a lot to do something like that
2
12%
No it's a waste
6
35%
Yes
5
29%
Not sure
4
24%
Hey, it can't hurt
0
No votes
No but if they want to do it, let them
0
No votes
 
Total votes : 17

Have MS or know someone with MS?

Postby haylz55 » Mon Apr 05, 2010 3:06 am

Hi all. I am doing a trek to Machu Picchu to raise funds for those with MS. There are so many people who, because of being diagnosed, can't do this. Therefore, I am going to take a scroll with me and read aloud the list of names of people with MS when I hit the summit of my trek. This is to raise more awareness about this disease.

If you would like to donate any amount (from as little as £1) and have the name of yourself or someone with MS that you know of read aloud on my trek, please visit http://www.justgiving.com/msgetsonmynerves I will be video recording reading the names aloud and posting to you tube & my blog upon returning from my trek.

My partner has RRMS. I support her wholly and have recently raised £900 for the MS Society. I have a new goal of reaching £5000 for my local MS branch (Eastbourne & Wealdon) via the National MS Society UK. You can read about my fundraising journey on my blog about MS at http://hayleysexperience.blogspot.com
"A thousand mile journey begins with a single step" Lao Tsu<br /><br /><strong><a href="http://www.justgiving.com/msgetsonmynerves" target="_blank">www.justgiving.com/msgetsonmynerve</a>s</strong><br />
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Postby Punchy » Sat Apr 10, 2010 6:36 am

Good for you, and good luck.

I am doing the local MS Society walk, however I can't decide if I really support that organization. They have never been of any help to me, even when I've asked for it.
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Postby haylz55 » Sat Apr 10, 2010 2:53 pm

Punchy wrote:Good for you, and good luck.

I am doing the local MS Society walk, however I can't decide if I really support that organization. They have never been of any help to me, even when I've asked for it.


Thank you for the note. I'm sorry to hear that you have not had much help from the MS Society. We are lucky to have had a lot of support both myself and my partner who has MS.
Best of luck with the walk... whoever you decide to raise money for, just make sure it's a charity that means something to you. It makes it a whole lot more meaningful to raise money for.
Thanks again for the encouragement. Some people think what I'm doing is a waste of time but at least I can say I tried my best at helping to raise awareness. If one more person is made aware of it, then that's one more person who might help fight to find a cure!
Good Luck :D
"A thousand mile journey begins with a single step" Lao Tsu<br /><br /><strong><a href="http://www.justgiving.com/msgetsonmynerves" target="_blank">www.justgiving.com/msgetsonmynerve</a>s</strong><br />
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Postby Punchy » Sat Apr 10, 2010 4:58 pm

It could never be a waste of time if it makes you feel good. :D
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Postby ndwannabe » Sun Apr 11, 2010 10:46 pm

Regarding raising awareness - I think plenty of medical community are aware of MS and those would be the ones developing a cure.

MS is the text books in medical schools .

The MS Society (at least here in USA) does not seem to be very open minded about looking for a cure. Developing new DRUGS - yes. Looking for a cure - not really.
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Postby Husker48 » Fri Apr 16, 2010 11:12 am

Our MS walk is tomorrow and I will be participating along with fund raising. Our local chapter has been nothing but great anytime I have needed anything.

Maybe you guys that are having trouble just haven't found someone at the chapter that you can connect with.

I hope everything turns out well for you guys. The only way we will come up with a cure is by raising money for research. Clay Walker, country musician, is a great advocate for MS as he is a sufferer as well and he has raised over a million dollars for MS research. Positive thinking produces positve results!!
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