are there any others besides yourself

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are there any others besides yourself

Postby globab » Mon May 10, 2010 8:22 am

just wondering if you are the only one in your family with MS......

for me, there is my younger sister, and myself, and two cousins (that are sibblings)
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Postby LR1234 » Mon May 10, 2010 8:23 am

Aunt had MS.
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Postby sbr487 » Mon May 10, 2010 8:48 am

my Mom (suspected)
Its so clear in my case that genetics plays a role.
My sister does not have nor she has any characters of my mom ...
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Postby msgator » Mon May 10, 2010 11:03 am

just me. No one else anywhere in family even suspected.
always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
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ms

Postby caraboo » Mon May 10, 2010 11:15 am

Just me , no one else in whole family.

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Postby SandyK » Mon May 10, 2010 12:05 pm

I'm the only one.
Diagnosed 1994, Self EDSS is 6.5
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Postby TeachX3 » Mon May 10, 2010 1:10 pm

I am the only one... however, most of my family has other issues, such as severe thyroid problems, migraines, female problems (which I have extensively as well) allergies, etc...
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Postby Husker48 » Mon May 10, 2010 2:31 pm

My Aunt had MS and I have a cousin who has it.
I can do all things through Christ who strengthens me. Phillipians 4:13
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Postby Bubba » Mon May 10, 2010 5:06 pm

No one else, just me; Thank God....
w/m 44
The problem comes with the decision of weighing the unknown with the unknown.
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Postby Lo » Mon May 10, 2010 6:37 pm

Just me.
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Postby L » Mon May 10, 2010 7:19 pm

I don't know anyone else with MS except for you lot..

But my dad describes a 'trapped nerve' that he suffered from for a year or so in the 60's, which sounds to me just like my first symptoms of you-know-what.
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just my luck

Postby hwebb » Mon May 10, 2010 9:51 pm

my grandmother's grandmother had MS. Skipped all those generations, and has expressed itself in me. I have a suspicion that my Mum has narrow veins too - but not bad enough to cause MS. She has a few of my symptoms. She wont get tested (not even a Doppler). Can't say I blame her, as the medicine options are pretty crappy (bad side effects, low efficacy - not worth it unless your disease is obviously marching forward).
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Postby jenf » Tue May 11, 2010 1:47 pm

Just me...
Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12

Late Stage Lyme - 12/10
Too many meds to list!!

Remember, today is the tomorrow you worried about yesterday..
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Postby bromley » Tue May 11, 2010 2:52 pm

Globab,

TIMS had a poll asking this question. See link to the results below:

http://www.thisisms.com/survey-results-15--0-0.html


All the best

Ian
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Re: are there any others besides yourself

Postby euphoniaa » Sat May 15, 2010 6:04 am

globab wrote:just wondering if you are the only one in your family with MS......


I have a cousin with MS, my dad and another cousin have HNPP (Hereditary Neuropathy with liability to Pressure Palsies), and I've been diagnosed with both. (Dad had genetic testing, and 50% of their offspring have it.) That means that my peripheral nerves are demyelinating like my central nervous system and I have a missing myelin gene. :) I really think there must be a connection between them.

I write about peripheral neuropathy on here a lot, because it's impossible to tell which of my symptoms are from MS and which are PNS issues. Since the peripheral nerves are all the ones that are not in the CNS (brain/spinal cord), they're just as likely to cause some of the same symptoms as MS - especially for someone like me, but I suspect that other MSers have a few PNS issues as well, even without HNPP.

Here's a bit info for anyone who's interested. This is why I wonder if I would even notice if my MS disappeared. :)

http://www.merck.com/mmhe/sec06/ch095/ch095i.html

Hereditary Neuropathy With Liability to Pressure Palsies

Hereditary neuropathy with liability to pressure palsies is a hereditary disorder in which nerves become very sensitive to pressure, injury, and use.

In this neuropathy, nerves are susceptible to damage resulting from relatively slight pressure or injury or from repetitive use. Usually, this neuropathy starts during adolescence or young adulthood, but it may start at any age...

Peroneal nerve palsy with footdrop, ulnar nerve palsy, and carpal tunnel syndrome commonly develop. Numbness or weakness occurs periodically in the affected area. Symptoms vary from unnoticeable and mild to severe and incapacitating. Episodes may last several minutes to months.


Wishing good health vibes to all of us this morning. :)
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
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