are there any others besides yourself

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

are there any others besides yourself

Postby globab » Mon May 10, 2010 8:22 am

just wondering if you are the only one in your family with MS......

for me, there is my younger sister, and myself, and two cousins (that are sibblings)
User avatar
Family Member
Posts: 25
Joined: Thu Dec 03, 2009 4:00 pm


Postby LR1234 » Mon May 10, 2010 8:23 am

Aunt had MS.
Family Elder
Posts: 1516
Joined: Wed Feb 11, 2009 4:00 pm
Location: California

Postby sbr487 » Mon May 10, 2010 8:48 am

my Mom (suspected)
Its so clear in my case that genetics plays a role.
My sister does not have nor she has any characters of my mom ...
User avatar
Family Elder
Posts: 865
Joined: Tue Nov 24, 2009 4:00 pm
Location: India

Postby msgator » Mon May 10, 2010 11:03 am

just me. No one else anywhere in family even suspected.
always look on the bright side of life

Veins opened 10/15/10. RIJV still on the small side. Feeling much better.
User avatar
Family Elder
Posts: 103
Joined: Wed Mar 17, 2010 4:00 pm
Location: USA


Postby caraboo » Mon May 10, 2010 11:15 am

Just me , no one else in whole family.

User avatar
Family Member
Posts: 68
Joined: Thu Feb 25, 2010 4:00 pm
Location: scotland

Postby SandyK » Mon May 10, 2010 12:05 pm

I'm the only one.
Diagnosed 1994, Self EDSS is 6.5
User avatar
Family Elder
Posts: 221
Joined: Wed Oct 14, 2009 3:00 pm
Location: WA

Postby TeachX3 » Mon May 10, 2010 1:10 pm

I am the only one... however, most of my family has other issues, such as severe thyroid problems, migraines, female problems (which I have extensively as well) allergies, etc...
User avatar
Posts: 6
Joined: Fri May 07, 2010 3:00 pm

Postby Husker48 » Mon May 10, 2010 2:31 pm

My Aunt had MS and I have a cousin who has it.
I can do all things through Christ who strengthens me. Phillipians 4:13
User avatar
Posts: 7
Joined: Sun Mar 28, 2010 3:00 pm
Location: Sioux Falls, SD

Postby Bubba » Mon May 10, 2010 5:06 pm

No one else, just me; Thank God....
w/m 44
The problem comes with the decision of weighing the unknown with the unknown.
User avatar
Family Elder
Posts: 488
Joined: Fri Feb 13, 2009 4:00 pm
Location: Lithia (Pinecrest, Florida

Postby Lo » Mon May 10, 2010 6:37 pm

Just me.
Family Member
Posts: 33
Joined: Tue Apr 13, 2010 3:00 pm
Location: Florida

Postby L » Mon May 10, 2010 7:19 pm

I don't know anyone else with MS except for you lot..

But my dad describes a 'trapped nerve' that he suffered from for a year or so in the 60's, which sounds to me just like my first symptoms of you-know-what.
User avatar
Family Elder
Posts: 946
Joined: Sat Oct 20, 2007 3:00 pm
Location: The United Kingdom

just my luck

Postby hwebb » Mon May 10, 2010 9:51 pm

my grandmother's grandmother had MS. Skipped all those generations, and has expressed itself in me. I have a suspicion that my Mum has narrow veins too - but not bad enough to cause MS. She has a few of my symptoms. She wont get tested (not even a Doppler). Can't say I blame her, as the medicine options are pretty crappy (bad side effects, low efficacy - not worth it unless your disease is obviously marching forward).
User avatar
Family Elder
Posts: 361
Joined: Thu Nov 26, 2009 4:00 pm
Location: Melbourne, Australia

Postby jenf » Tue May 11, 2010 1:47 pm

Just me...

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12

Late Stage Lyme - 12/10
Too many meds to list!!

Remember, today is the tomorrow you worried about yesterday..
Family Elder
Posts: 106
Joined: Thu Sep 17, 2009 3:00 pm
Location: Albany, NY

Postby bromley » Tue May 11, 2010 2:52 pm


TIMS had a poll asking this question. See link to the results below:

All the best

User avatar
Family Elder
Posts: 1888
Joined: Fri Sep 10, 2004 3:00 pm

Re: are there any others besides yourself

Postby euphoniaa » Sat May 15, 2010 6:04 am

globab wrote:just wondering if you are the only one in your family with MS......

I have a cousin with MS, my dad and another cousin have HNPP (Hereditary Neuropathy with liability to Pressure Palsies), and I've been diagnosed with both. (Dad had genetic testing, and 50% of their offspring have it.) That means that my peripheral nerves are demyelinating like my central nervous system and I have a missing myelin gene. :) I really think there must be a connection between them.

I write about peripheral neuropathy on here a lot, because it's impossible to tell which of my symptoms are from MS and which are PNS issues. Since the peripheral nerves are all the ones that are not in the CNS (brain/spinal cord), they're just as likely to cause some of the same symptoms as MS - especially for someone like me, but I suspect that other MSers have a few PNS issues as well, even without HNPP.

Here's a bit info for anyone who's interested. This is why I wonder if I would even notice if my MS disappeared. :)

Hereditary Neuropathy With Liability to Pressure Palsies

Hereditary neuropathy with liability to pressure palsies is a hereditary disorder in which nerves become very sensitive to pressure, injury, and use.

In this neuropathy, nerves are susceptible to damage resulting from relatively slight pressure or injury or from repetitive use. Usually, this neuropathy starts during adolescence or young adulthood, but it may start at any age...

Peroneal nerve palsy with footdrop, ulnar nerve palsy, and carpal tunnel syndrome commonly develop. Numbness or weakness occurs periodically in the affected area. Symptoms vary from unnoticeable and mild to severe and incapacitating. Episodes may last several minutes to months.

Wishing good health vibes to all of us this morning. :)
Dx'd with MS & HNPP (hereditary peripheral neuropathy) 7/03 but must have had MS for 30 yrs before that. I've never taken meds for MS except 1 yr experiment on LDN. (I found diet, exercise, sleep, humor, music help me the most.)
User avatar
Volunteer Moderator
Posts: 799
Joined: Sat Jul 15, 2006 3:00 pm
Location: midwest U.S.


Return to General Discussion

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service