Multiple sclerosis risk sharing scheme: a costly failure

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Postby NHE » Tue Jun 08, 2010 4:01 am

Meira wrote:Effectiveness is reduced by antibody formation.

Neutralizing antibody formation tends to be higher in the subcutaneously injected interferons, especially Betaseron since it is produced in bacteria and is not glycosylated.

Meira wrote:Three years on interferon-b 22mcg, eg. Avonex, and you are worse than not taking anything?

R-22 is a dosage of Rebiff, not Avonex.

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Re: Yes, DMDs again.

Postby rainer » Wed Jun 09, 2010 9:24 pm

mrsenstitz wrote:
I logged on to this site to read a higher level of discussion. What I read was OMG STOP THESE DRUGS NOW!!!!! CLASS ACTION!!!

Please, take a step back and have a little more consideration for those people for whom the drugs actually work.
Most of you may hate 'Big Pharma'. I don't really care. What I care about is access to drugs and therapies (CCSVI for example) that may work.

I will take exception to this b/c I mentioned a class action suit.

Based on the article the drug companies defrauded the government by continuing to charge a rate for medication that was not meeting the standard agreed upon. I am no lawyer but I would think patients in that program have a decent argument for how they were misled into losing time and money due to the acts of the drug company.

I consider this article damning and don't think you need to be pro/anti anything to see that.
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Postby jgkarob » Thu Jun 10, 2010 12:18 am

I'm sorry you take exception, but I was posting about the situation in the UK.
It was a scheme that was brought in so that people with RRMS could have access to the DMDs.
The statistical gathering was flawed and incompetent, but I think it was intended to be that way to right an injustice so that once the drugs were being prescribed that no government would then take them away from people who were doing well.
This illustrates the huge difference in attitude to drugs and health care in Europe and the UK and the US.
Even now, only 15% of people with MS have access to the DMDs.

People here were commenting, slightly hysterically and taking one negative report as being conclusive and damning evidence that as the US calls them, the CRAB drugs.

Class actions don't happen in the UK.
Thisisms is read by people around the world, but so many activists from the US don't seem to appreciate that prescribing and criteria for prescribing are quite different in other countries.

I was surprised and disappointed by the reactions on facebook and on here. Ferocious attacks on how 'Big Pharma' had lied.

Also posters were linking a decision made in 2002, to give access to the DMDs with the issue of CCSVI. There is no link in this case.

There is no need to take exception to my comments. I'm not sure what your attitude is towards the drugs. You may have taken them and had no benefit.
My position, is that I owe my health to starting Rebif at the right time. It stopped the relapses.
Simply that.
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