When my PCP first sent me to a Neurologist, I told her that I would like one that will listen to me AND appreciate the fact that I WILL NOT jump on taking drugs and that I will always do my research first, way the options, look for CAM, etc. Her response: Good luck with that, I have yet to find a Neuro that doesn't realize that he is NOT a god.
I did see the first Neuro, who suspected MS and then sent me for NUMEROUS other tests which brought him closer to the diagnosis. I must give him credit, however, because he suggested that I see another Neuro who specializes in MS for my own good. It started out that he just wanted a second opinion, but when the MS opinion was shared he told me that it would be in my best interest to see the MS specialist and that he would be doing me a great disservice if he did not make that suggestion.
Now, I see the MS specialist. My concern was/is that Neuros who specialize in MS might have blinders on to other issues. In addition, this MS Specialist runs an MS center. We all know that much of the funding for these types of centers comes from the Pharmaceutical companies that make the MS drugs. When I met with him, I did share with him that I am very cautious, and will continue to be cautious, about any drugs that I take. So far, he seems to accept that. As a matter of fact, he has even made jokes at my follow up visits when he asks how a certain med (for symptoms) is working for me. He says 'Let me guess, you didn't take it because you were concerned about one of the side effects'.
My last visit with him did no go well, however, from my husband's perspective. It was the very first visit for my husband and he had alot of questions. My guess is that the doctor was frustrated that all of a sudden my husband was asking oodles of questions. My husband asked about Lyme and asked if I had an ELISA or Western Blot. The Neuro rolled his eyes. So -- that didn't go over well. Our follow up was to call my PCP and request a Western Blot by Igenix, and the PCP is currently trying to make that happen.
SO....very long story short, WE WILL SEE what happens once the Neuro finds out that I went to my PCP for a second Lyme Test.