This Is MS Multiple Sclerosis Community: Knowledge & Support

[bhrungo]

Thinking of participating in this trial at the Mayo Clinic. Got all the info today. Anyone here in this trial? If so, how is it going? Any side effects or issues you care to discuss? I am seriously considering this one.

Thanks!!!

[Shayk]

Hi Bhrungo

I'm not in the estriol/Copaxone trial but I've been on estriol/progesterone +Copaxone for about 3-4 years. Before that I was on Avonex with estriol/progestrone (diagnosed 7 years ago). So far so good, I also "do" exercise, diet and supplements.

The only side effects IMO have been from the DMDs--in retrospect Avonex made me worse (I wanted off it after 6 months but persisted for a couple of years) and Copaxone side effects are primarily injection site related.

Here's a link to the estriol thread which has info mostly about other hormones.

Please let us know if you decide to enter the trial and how it goes. It's been a long, long time and lots of effort trying to complete the trial since there's no pharmaceutical company issuing press releases every other day.

Here's a link to an article that describes some of the struggle. Quest for an effective MS treatment stymied

finding a way to underwrite costly research that won’t necessarily have a big payoff is about as easy as finding a miracle cure

All the best to you.

Sharon