This Is MS Multiple Sclerosis Community: Knowledge & Support

Welcome to the world's leading forum on Multiple Sclerosis research, support, and knowledge. For over 10 years, This is MS has provided an unbiased community dedicated to Multiple Sclerosis patients, caregivers, and affected loved ones.
It is currently Tue May 21, 2013 2:10 am

View unanswered posts | View active topics


Board index » Multiple Sclerosis » General Discussion

All times are UTC - 8 hours [ DST ]



Post new topic Reply to topic  Page 1 of 1
  [ 8 posts ] 
  Print view Previous topic | Next topic 
Author Message
pincushion
 Post subject: Has anyone tried IVIG?
PostPosted: Thu Mar 25, 2004 10:21 am 
Offline
Newbie
User avatar

Joined: Wed Feb 18, 2004 4:00 pm
Posts: 3
Location: Long Island, NY
Hi there, Did my first week of treatment wondering if anyone else here has any expeience with this. Stands for Intravenous immunoglobulin infushions, mine was 5 days 4 hours per day. Thanks for any input! Take care, Jean
Top
 Profile  
 
Arron
 Post subject:
PostPosted: Thu Mar 25, 2004 12:13 pm 
Offline
Volunteer Moderator
User avatar

Joined: Sun Feb 01, 2004 4:00 pm
Posts: 889
Location: California, USA
hi pincushion, please keep us posted on your results with this treatment! If you get a few responses to this thread, I'll be happy to set up a new category for IVIG.
Top
 Profile  
 
pincushion
 Post subject:
PostPosted: Thu Mar 25, 2004 12:41 pm 
Offline
Newbie
User avatar

Joined: Wed Feb 18, 2004 4:00 pm
Posts: 3
Location: Long Island, NY
Hello Arron...Thanks Arron, I hope I do get some feedback...this stuff has supposedly done wonders for some, including remylination! So far I have not seen anything as far as improvements, I'm trying to keep an open mind about it, hard to do when it gets "foggy"! ...Jean
Top
 Profile  
 
fightingms
 Post subject:
PostPosted: Fri Mar 26, 2004 9:01 am 
Offline
Family Member
User avatar

Joined: Fri Jan 09, 2004 4:00 pm
Posts: 80
Location: Western PA
Jean, Good Luck with the IVIG. Don't have any info for you, sorry, just wanted to wish you luck with the treatment.

Please keep us informed as to how it is helping you. :) .Thanks so much........Kim
Top
 Profile  
 
mbpetzak
 Post subject: IVIG
PostPosted: Tue Jun 08, 2004 9:54 am 
Jean,

I am currently on my 7th month of IVIG treatment for RRMS. I'd be interested in keeping in touch with you to share our experiences with this treatment as I do not know anyone else currently using this for RRMS. I don't know that I can evaluate the effectiveness at this point, but I can tell you that this is the first therapy I have tried that has not caused any complications. In the time I have been on the treatment, I have only had one significant relapse.

What has your experience been?

Feel free to email me directly at mbpetzak@cableone.net.

Take care,
Michelle
Top
  
 
kaym
 Post subject: IVIG
PostPosted: Sun Jun 20, 2004 12:35 pm 
Hi

I would also like to keep in touch as I am trying IVIG also. This will be my fourth month. I do get somewhat nausea after treatment but all other things seem to be ok. I just had surgery, which I received a treatment before and will get another this week. So far, so good. Hope, to talk to you later to see how things are.

Kay
Top
  
 
mowithms
 Post subject: ivig treatment x1
PostPosted: Mon Jul 12, 2004 6:10 pm 
Offline
Newbie
User avatar

Joined: Wed Jul 07, 2004 3:00 pm
Posts: 1
My husband just finnished his first IVIG tx (30grams x4days) after Avonex wasn't working for his fairly aggressive rrms. No huge improvements yet in his main symptoms of dizziness, fatigue, and weakness. He was very nauseated and throwing up 3 days after the last tx and really had a bad day after he had his Avonex shot on Friday (last tx of IVIG was on Tues). We go to the MD tomorrow to see what the plan is.


Top
 Profile  
 
mattiejo
 Post subject: Ivig
PostPosted: Tue Aug 17, 2004 8:48 pm 
Offline
Newbie
User avatar

Joined: Mon Aug 16, 2004 3:00 pm
Posts: 1


Hi, I am new to this board. I am female with SPMS. I am treated 3 day's 1x month with IVIG.

Was reading your post and wanted to let you all know that IVIG is the only treatment that has helped me so far.

I have been on all the ABC'S..... No help, with continued progression.

Who knows if in the long run if IVIG helps but, it sure makes me feel a difference for awhile.

What about all of you that are on it? I would love to hear from you and how your treatment is going.

Please drop me a line.

Mattiejo :lol:


Top
 Profile  
 
Display posts from previous:  Sort by  
Post new topic Reply to topic  Page 1 of 1
  [ 8 posts ] 

Board index » Multiple Sclerosis » General Discussion

All times are UTC - 8 hours [ DST ]

Related topics
 Topics   Author   Replies   Views   Last post 
There are no new unread posts for this topic. IVIG

RuSmolikova

0

1107

Sun Jan 04, 2009 11:58 am

RuSmolikova View the latest post

There are no new unread posts for this topic. IVIg

LR1234

2

752

Sat Jul 16, 2011 1:42 am

LR1234 View the latest post

There are no new unread posts for this topic. IVIG for exacerbation???

notasperfectasyou

1

1084

Sat Apr 21, 2007 1:37 am

TonyJegs View the latest post

There are no new unread posts for this topic. ivig immune globulin

kirsten

3

926

Fri Aug 20, 2010 6:56 pm

LauraV View the latest post

There are no new unread posts for this topic. whirlwind of a year- getting IVIG, ? diagnosis

Bella98

8

684

Sun Mar 18, 2012 7:19 pm

Bella98 View the latest post

 


Who is online

Users browsing this forum: No registered users

You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum

Search for:
Jump to: