This Is MS Multiple Sclerosis Community: Knowledge & Support
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Hi there, Did my first week of treatment wondering if anyone else here has any expeience with this. Stands for Intravenous immunoglobulin infushions, mine was 5 days 4 hours per day. Thanks for any input! Take care, Jean
Hello Arron...Thanks Arron, I hope I do get some feedback...this stuff has supposedly done wonders for some, including remylination! So far I have not seen anything as far as improvements, I'm trying to keep an open mind about it, hard to do when it gets "foggy"! ...Jean
I am currently on my 7th month of IVIG treatment for RRMS. I'd be interested in keeping in touch with you to share our experiences with this treatment as I do not know anyone else currently using this for RRMS. I don't know that I can evaluate the effectiveness at this point, but I can tell you that this is the first therapy I have tried that has not caused any complications. In the time I have been on the treatment, I have only had one significant relapse.
I would also like to keep in touch as I am trying IVIG also. This will be my fourth month. I do get somewhat nausea after treatment but all other things seem to be ok. I just had surgery, which I received a treatment before and will get another this week. So far, so good. Hope, to talk to you later to see how things are.
My husband just finnished his first IVIG tx (30grams x4days) after Avonex wasn't working for his fairly aggressive rrms. No huge improvements yet in his main symptoms of dizziness, fatigue, and weakness. He was very nauseated and throwing up 3 days after the last tx and really had a bad day after he had his Avonex shot on Friday (last tx of IVIG was on Tues). We go to the MD tomorrow to see what the plan is.