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pincushion
 Post subject: Has anyone tried IVIG?
PostPosted: Thu Mar 25, 2004 10:21 am 
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Location: Long Island, NY
Hi there, Did my first week of treatment wondering if anyone else here has any expeience with this. Stands for Intravenous immunoglobulin infushions, mine was 5 days 4 hours per day. Thanks for any input! Take care, Jean
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Arron
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PostPosted: Thu Mar 25, 2004 12:13 pm 
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Location: California, USA
hi pincushion, please keep us posted on your results with this treatment! If you get a few responses to this thread, I'll be happy to set up a new category for IVIG.
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pincushion
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PostPosted: Thu Mar 25, 2004 12:41 pm 
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Hello Arron...Thanks Arron, I hope I do get some feedback...this stuff has supposedly done wonders for some, including remylination! So far I have not seen anything as far as improvements, I'm trying to keep an open mind about it, hard to do when it gets "foggy"! ...Jean
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fightingms
 Post subject:
PostPosted: Fri Mar 26, 2004 9:01 am 
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Posts: 80
Location: Western PA
Jean, Good Luck with the IVIG. Don't have any info for you, sorry, just wanted to wish you luck with the treatment.

Please keep us informed as to how it is helping you. :) .Thanks so much........Kim
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mbpetzak
 Post subject: IVIG
PostPosted: Tue Jun 08, 2004 9:54 am 
Jean,

I am currently on my 7th month of IVIG treatment for RRMS. I'd be interested in keeping in touch with you to share our experiences with this treatment as I do not know anyone else currently using this for RRMS. I don't know that I can evaluate the effectiveness at this point, but I can tell you that this is the first therapy I have tried that has not caused any complications. In the time I have been on the treatment, I have only had one significant relapse.

What has your experience been?

Feel free to email me directly at mbpetzak@cableone.net.

Take care,
Michelle
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kaym
 Post subject: IVIG
PostPosted: Sun Jun 20, 2004 12:35 pm 
Hi

I would also like to keep in touch as I am trying IVIG also. This will be my fourth month. I do get somewhat nausea after treatment but all other things seem to be ok. I just had surgery, which I received a treatment before and will get another this week. So far, so good. Hope, to talk to you later to see how things are.

Kay
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mowithms
 Post subject: ivig treatment x1
PostPosted: Mon Jul 12, 2004 6:10 pm 
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My husband just finnished his first IVIG tx (30grams x4days) after Avonex wasn't working for his fairly aggressive rrms. No huge improvements yet in his main symptoms of dizziness, fatigue, and weakness. He was very nauseated and throwing up 3 days after the last tx and really had a bad day after he had his Avonex shot on Friday (last tx of IVIG was on Tues). We go to the MD tomorrow to see what the plan is.


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mattiejo
 Post subject: Ivig
PostPosted: Tue Aug 17, 2004 8:48 pm 
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Hi, I am new to this board. I am female with SPMS. I am treated 3 day's 1x month with IVIG.

Was reading your post and wanted to let you all know that IVIG is the only treatment that has helped me so far.

I have been on all the ABC'S..... No help, with continued progression.

Who knows if in the long run if IVIG helps but, it sure makes me feel a difference for awhile.

What about all of you that are on it? I would love to hear from you and how your treatment is going.

Please drop me a line.

Mattiejo :lol:


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