Just Wondering...
Just Wondering...
Do you get to the point that "fighting" this nasty disease gets futile? I am sick and tired of being sick and tired but I just don't want to fight anymore. I'm not talking suicide...I just don't think it's worth fighting anymore. Nothing seems to really help. No one really seems to want a cure. They want to hit the jackpot for monetary gain. If there's not money in it then it's not of any value. When do you decide enough is enough?
Marcia
ssmme,
I feel so saddened by your post. There are so few words to express how my heart aches for you.
My daughter has MS and gets to the point you are at. Please know that the fight is so important. Do not give up as we are all in this together and really are pulling for you all in every way.
There ARE wonderful doctors out there (Dr. Sclafani on our website for one) who are not in it for the money and are really dedicating so much of their time and effort into finding a way forward. Not to mention the wonderful people on this website who are so knowledgeable and committed to giving us the most up to date information out there and possible new therapies.
Please know that WE ALL WANT A CURE and will fight for it with you.
Drury
I feel so saddened by your post. There are so few words to express how my heart aches for you.
My daughter has MS and gets to the point you are at. Please know that the fight is so important. Do not give up as we are all in this together and really are pulling for you all in every way.
There ARE wonderful doctors out there (Dr. Sclafani on our website for one) who are not in it for the money and are really dedicating so much of their time and effort into finding a way forward. Not to mention the wonderful people on this website who are so knowledgeable and committed to giving us the most up to date information out there and possible new therapies.
Please know that WE ALL WANT A CURE and will fight for it with you.
Drury
We'll get there!Marcia,
When I first joined TIMS, I was primarily interested in Campath, so I followed your postings. I wish I had some good words of wisdom, but I really don't. All I can say is, it seems like you have really gone above and beyond to try and fight this.
Maybe just give it some time, to seem if the Campath/CCSVI yield some benefits?
When I first joined TIMS, I was primarily interested in Campath, so I followed your postings. I wish I had some good words of wisdom, but I really don't. All I can say is, it seems like you have really gone above and beyond to try and fight this.
Maybe just give it some time, to seem if the Campath/CCSVI yield some benefits?
I know that feeling - I have had that feeling, lots. Feeling crappy and out of control of your life can really get you down. I got to a real low point and tried to commit suicide last year but I'm still here thanks to my husband and some amazing people.
I'm trying to say that there is hope. Not necessarily for a miracle cure (and I'm rubbish on knowledge of tests, treatments etc, sorry) but for life. Ms can be a bitch and can take stuff away but there is plenty that you can keep a grip on. There is so much more to life. I have needed to adjust but I haven't let go of my hopes, dreams, love and am finally seeing a positive future, whether I do it in this wheelchair or completely cured at some point. There is so much life to live and I have wasted too long grieving, not living.
I really really hope that I don't sound preachy, i'm just struggling to find the words cos there is nothing more irritating then someone telling you to buck up when you feel bad. Feel free to PM me if you want to talk.
G
I'm trying to say that there is hope. Not necessarily for a miracle cure (and I'm rubbish on knowledge of tests, treatments etc, sorry) but for life. Ms can be a bitch and can take stuff away but there is plenty that you can keep a grip on. There is so much more to life. I have needed to adjust but I haven't let go of my hopes, dreams, love and am finally seeing a positive future, whether I do it in this wheelchair or completely cured at some point. There is so much life to live and I have wasted too long grieving, not living.
I really really hope that I don't sound preachy, i'm just struggling to find the words cos there is nothing more irritating then someone telling you to buck up when you feel bad. Feel free to PM me if you want to talk.
G
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Loobie
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Fighting is all we can do Mar, you can keep it up if for nothing else than to stick your finger in MS's eye! Easy to say of course, but I got a 'little better' when I quit comparing what was going on with me to my healthy self. I just 'ain't that person anymore. So when I need to exert effort, I know it's going to suck eggs. For the longest time every time I'd get dizzy and spacy and weak, I would get all bummed out. I had to stop that to move forward.