Good news just for you BOB

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Good news just for you BOB

Postby chrishasms » Fri Sep 10, 2010 11:45 am

Seems at the rate my disability has kicked back in unless they can find some
way to slow it down my doctor said to me in 5-10 years I will be completely
disabled and on my way out. I got a doctor who doesn't BS me.

Just came back to share the good news with someone who would be happy
about it.

I'll go back to the forums I'm welcomed at now.

Chris
Last edited by chrishasms on Thu Sep 16, 2010 1:04 pm, edited 2 times in total.
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Postby scorpion » Fri Sep 10, 2010 12:16 pm

Chris I am really sorry about your recent set back but you are assuming that nothing will come along in the next 5-10 years to slow down your MS or even help you to improve. None of us on here want to see anyone get worse.
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Postby patientx » Sat Sep 11, 2010 10:24 am

Chris:

Real sorry to hear this. Did your doctor suggest anything to try? What about HiCy re-dosing?
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Postby shye » Sat Sep 11, 2010 12:32 pm

Sorrry to hear this Chris--
what are you doing to try to slow down the progression?
There is such a wealth of different approaches that can be found here on
TIMS--worth trying more than a few!
Good luck to you...
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Postby chrishasms » Thu Sep 23, 2010 7:34 am

If I say anything here I am censored immediately. If you would like to see how I am doing you can catch up with me on Facebook at

http://www.facebook.com/?ref=home#!/chrishadms just message me where you are from when you friend request.

We have some very open drag down arguments over there where people actually have to support their arguments, not just start them. Plus whatever you say won't be censored or removed. We talk about everything we can't here. You'll also notice some of the disappeared CCSVI folks as friends are on the friends list, also a couple of disappeared HiCy people...all who are doing well.

This is a great place to find out what is going on in the medical field but to actually get to vent, argue, and the ability to stick up for ones self, it is not. I am sure it is Republican ran as it censors freely.

Good luck folks I do read the info on the meds but the forums on here, well, they've lost it. I will usually read the article link that start the post but nothing after that. I need to make my own decisions not what I "should think."

My doctor just told me life is too short if the last three drugs don't work. Then I try HiCy one more time and it's done.I have been told based on the 30+ years of treating MS, not liking big pharma, and not doing anything unnecessary, told me I have 5-10 years away from complete disability. Life -especially mine, is far too short to try to defend myself and be censored over here.

I don't post here anymore at all. I did to let someone know how my neuro appointment went so they could have the last laugh. Otherwise, I and a bunch of others have left.

To those remaining, good luck to you all and I hope they find a cure for this disease before we are all dead. May not happen for me but if you are newly dx'd, get a good MS neuro, read about every drug on this page, make a decision, and never end up like me.

I'll miss some of you. I am sure this will be retyped or censored anyhow and will need to be retyped anyhow.

Chris T Young
MS Survivor and advocate
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Re: Good news just for you BOB

Postby NHE » Fri Sep 24, 2010 1:14 am

Chris,
I'm saddened to hear about the negative changes in the status of your disease. However, I find it necessary to reply to your post. You have made false accusations about ThisIsMS. We don't censor what people post. Though please note that this is a community and as such it operates under the Rules of the Board which states among other things...

Arron wrote: Personal attacks, which can consist of slightly veiled innuendo or sarcastic comments aimed at the poster as opposed to the content of the post, are not tolerated at This is MS. We of course reserve the right to ban or suspend any member who violates this rule.


I have made your original thread available and restored your post to its initial state. Moreover, the private message that I sent to you after cleaning up the personal attacks is below. I believe that this will show that the editing I did was both in support of you and also in support of the ThisIsMS community. It is unfortunate that you feel otherwise.

NHE wrote:From: NHE
To: chrishasms
Posted: Sat Sep 11, 2010 12:56 am
Subject: Re: recent posts

Hi Chris,

BS. I watched Bob's post change a couple 2 ways before he decided on the perfect way to call me twisted LOL.

Cheers folks. I'm for one am glad I'm on my way out.



I'm saddened to hear that your MS is progressing. I had hopes that the revimmune treatment you underwent would have had more long term benefits for you. My own MS has likely switched to secondary progressive and I'm now using a cane whenever I leave the house and I'm now looking to get tested locally for CCSVI. Have you been tested yet? The results have been all over the place with respect to treatment. Some people have had incredible recoveries while others have remained the same or even gotten worse. Still, it's an intriguing paradigm with MS so I believe that it's worth investigating.

Sincerely, NHE


I sincerely hope that you can find something that can alter the course of your MS progression for the better.

NHE
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