I went on long-term disability in 2005 after working 25 years as a software engineer. I was required by the provider of my disability insurance (employer provided) to apply for SSDI as soon as possible. I did, and it took 2.5 years before my application was finally approved. After approval, it only took a month or so before I got my first SSDI check, but it took several months more (6 as I remember) before the backpay check came (this was backpay for almost 3 years of waiting for approval). BTW, all of the SSDI backpay check went immediately to the provider of my disability insurance, and it then took a few additional months before my monthly check from the disability insurer was reduced by the SSDI payment, and this overpayment also had to be paid back.
If this applies to you, keep it in mind, and don't spend any large checks that come your way.
I pretty much stay busy with small projects around the house, taking extension classes from my local college, getting exercise in some form or other, etc. For a time, I also facilitated a monthly MS support group at a local nursing home in the county, but gave this up to take better care of myself. But volunteer work was a very good way for me to feel connected and useful. I may start it up again at some point.
Not working has really been, and still is an enormous adjustment, almost as big an adjustment as coming to terms with my changing physical and mental abilities.
The best thing I did for depression when it became a problem was to get a puppy. He has been a great companion, and gets me out for short walks during the day.
CCSVI Procedure 9/16/2009 at Stanford
Stent in left and right IJVs
Copaxone and Ampyra user
Botox Bladder Injections