Odd Question Perhaps......

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Odd Question Perhaps......

Postby Stabilo » Thu Dec 09, 2010 10:47 am

Alright, sorry to bother with what may seem a silly question......

I was told by my neurologist that pain can trigger a relapse. What I'm wondering is if self inflicted pain differs from pain caused unexpectedly?? I am asking because I would like to get another tattoo....I only have one at the moment which I got pre MS dx, but it is the full top half of my left arm, and I was wanting to get another large one......I just don't want to trigger anything.......anybody out there get tattoos post dx? If so what was the outcome if anything in relation to your MS.....

Thanks
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Postby HappyPoet » Thu Dec 09, 2010 7:01 pm

Hi,

I have no experience with tatoos, but if there is any kind of pain with getting them, DO NOT risk an exacerbation for a tatoo... instead, enjoy all the more the one you already have and do something different with that $$, such as:

Make a donation to your favorite charity.
Make a donation to your favorite rock band's charity.
Buy yourself a new piece of jewelry.
Buy someone else a new piece of jewelry.
Put away the $$ for a rainy day.
Put away the $$ into my rainy day jar. ;)

Seriously, risking PERMANENT NEUROLOGICAL DAMAGE for any reason that causes PAIN is not something a pwMS should do because pain is a form of stress, and stress has been proven to cause NEW BRAIN LESIONS (scorpion or concerned can fish up the citation for you if you want to read the studies).

Best of luck.
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Postby Dahlia » Fri Dec 10, 2010 2:55 pm

I had emergency surgery 2 1/2 months ago. I was cut open and had intense post op pain, and as you can imagine I was also under a lot of stress.

NO RELAPSE !

If you want a tattoo, get one !
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Postby HappyPoet » Sat Dec 11, 2010 10:19 am

Dahlia wrote:I had emergency surgery 2 1/2 months ago. I was cut open and had intense post op pain, and as you can imagine I was also under a lot of stress.

NO RELAPSE !

If you want a tattoo, get one !

You are unusual and lucky because you didn't have a pseudo-exacerbation (old symptoms flaring), let alone a true exacerbation. Unfortunately, you most likely had a new lesion (or more) develop, one(s) not correlated to a symptom or not correlated to a symptom that you're aware of yet.
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Postby Dahlia » Sat Dec 11, 2010 12:13 pm

thanks for the 'positive' comment 'Happy' Poet,

only an MRI could prove that........

however, I feel and am absolutely fine. No flare up of old symptoms, no new symptoms !

I'm doing really well !
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Postby Algis » Sat Dec 11, 2010 8:54 pm

I am against tattoos, but that's a question of principles.
I had a surgery while already much disabled (EDSS~7) - implanting a catheter in the bladder - without general anesthesia - and it did not makes me any flare up or other in-comfort beside the hole in the belly and bladder.

But you only can decide :) Good luck!
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Postby HappyPoet » Sun Dec 12, 2010 7:38 am

Dahlia wrote:thanks for the 'positive' comment 'Happy' Poet,

only an MRI could prove that........

however, I feel and am absolutely fine. No flare up of old symptoms, no new symptoms !

I'm doing really well !

Dahlia, I did try to be positive by saying you were lucky, and I'm sorry my effort fell flat -- I should have tried harder not to let my worries trump my manners. I hope everyone reads the following important information about "silent" lesions caused by stress (and trauma):

Best of luck to everyone.

http://www.braininjury.com/multiplesclerosis.html

MULTIPLE SCLEROSIS AGGRAVATION
BY STRESS AND TRAUMA
Relationship Between Acute Stress and Aggravation of Multiple Sclerosis:

The relationship between acute stress and aggravation of quiet or asymptomatic MS is well established by medical literature especially that which has come out since the year 2000.

1. The study published in the distinguished Journal of Neurology in 2000 by Mohr et al entitled "Psychological Stress and the Subsequent Appearance of New Brain MRI Lesions in MS" examine the relationship between stressful life events and the subsequent development of brain lesions on MRI. The results state "for a total sample of patients, increase conflict and disruption in routine was followed by increased odds of developing new Gd + brain lesions eight weeks later."

2. An article (Esposito, et al) in the "Journal of Pharmacology and Experimental Therapeutics" looked at the cellular mechanism involved in stress on a microscopic level. Their findings, published December 2002, state "these results demonstrate that CRH and the mast cells are involved in regulating BBB permeability and possibly, brain inflammatory disorders exacerbated by acute stress."

3. An article from a distinguished British Medical Journal(BMJ) was published in 2003. The paper entitled "Self Reported Stressful Life Events and Exacerbations in Multiple Sclerosis: Prospective Study" (Buljevac D. et al, 2003) sought to study the relationship between stressful life events not related to MS and the occurrence of exacerbations in relapsing remitting MS. Patients used in the study were ones with the ability to walk, such as the Plaintiff. It noted in the introduction into the paper that "psychological stress is an additional factor that has been implicated repeatedly as a determinate of disease activity ever since Charcot first described the disease." In the conclusion to the study it was noted "stressful events were associated with increased exacerbations in relapsing-remitting multiple sclerosis. This association was independent of the triggering effect of infections on exacerbations of multiple sclerosis." They noted that this study fulfilled an earlier need by the American Academy of Neurology to obtain tightly defined prospective study on stress and aggravation of MS. They noted that their study adds "that patients with multiple sclerosis who experience a stressful event are subsequently at increased risk of an exacerbation of their disease."

4. A Harvard Medical School (2002) study "The Role of Stress in Neuro - degeneration Diseases and Mental Disorders" noted the relationship between stress and disease like MS.

5. A 2002 University of California study (Mohr D.C. et al) entitled "Moderating Effects of Coping on the Relationship Between Stress and the Development of New Brain Lesions in Multiple Sclerosis" stated "considerable research has supported a relationship between stress and both clinical exacerbation and the development of new brain lesions".

6. The Journal "Neuroendocrinology Letters" in 2004 published a supportive article.

7. The Journal of Neuroimmunology in 2004 confirmed again that stress can affect the mast cells leading to worsening of inflammatory diseases.



Multiple Sclerosis and Physical Trauma:

For over a century, patients and physicians have dealt with the phenomena that suggests that trauma may proceed the onset of MS or may aggravate ongoing MS. Because of the variability of the course of MS, there is some controversy regarding the causation between physical trauma and onset or aggravation of MS. However, more recent studies have shown that trauma to the head and neck does indeed bear a relationship to the aggravation of or creation of MS.

A 2001 article in the European Journal of Neurology (A. Chaudhuri and Behan). In the conclusion of the paper it is noted:

Like infection, which will trigger MS symptoms only in a portion of a patients [10% (McAlpine et al, 1965) - 48% (Sibley and Foley, 1965)], cervical cord hyperextension - hyperflexion injury is likely to unmask or worsen the natural course of MS in a sub group of affected patients with an underlying diathesis. This may be important because of the prevalence of asymptomatic ("silent") MS has been estimated to be about 25% of that diagnosed invivo (Engell, 1989). We make it clear that we do not propose physical trauma in any form causes MS per se. Physiologically, CNS - specific trauma produces focal reaches in the BBB [brain-blood barrier] and induces metabolic changes by activating the stress response. In addition, focal trauma also enhances the expression of nitric oxide synthase in the CNS microvasculature. In susceptible individuals, these effects might unleash critical changes in the level of pro-inflammatory cytokines and nitro oxide, this triggering MS symptoms ab initio or aggravating symptoms of pre-existing latent disease.

Dr. Charles Poser of Harvard Medical School has long been a proponent of the link between trauma and MS. As he notes in his enclosed paper entitled "Trauma to the Central Nervous System May Result in Formation or Enlargement of Multiple Sclerosis Plaques," "In some patients with MS certain types of trauma may act as a trigger at sometime for the appearance of new or recurrent symptoms. Only trauma affecting the head, neck or upper back, that is, to the brain and/or spine cord can be considered significant." (Published in the Archives of Neurology, July 2000). Dr. Poser goes on to talk about the effects of whiplash on the central nervous system and outlines the existing extensive medical research that back up the correlation.
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Postby Bubba » Sun Dec 12, 2010 12:04 pm

I have multiple tats both pre and post dx. No problems. Working on my half sleeves now... :D
w/m 44
The problem comes with the decision of weighing the unknown with the unknown.
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Postby HappyPoet » Sun Dec 12, 2010 2:20 pm

The point is that one does not know they have gotten a new, silent lesion due to stress, and once started, that lesion could keep growing over time -- it's a risk one takes *IF* one is stressed from tattoo-related pain.

Some people can handle pain better than others. One can have pain but not be stressed by that pain. Hey, I can even see a situation where one's arm can be slightly numb so pain can't be felt at all... no pain, no stress. I can also see where one didn't have tat-related pain in the past, but due to MS sensory fiber changes, one can have that pain in the future.

Pain can be stressful at times. Stress can cause lesions, silent or not.

Bubba, why do I have the feeling that nothing much can stress you out? ;)
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Postby Stabilo » Sun Dec 12, 2010 10:37 pm

thanks for all the input.......I definitely didn't find "stress" from my first half sleeve. I sat for over 6 hours, and actually kind of enjoyed it ;P I suppose after childbirth nothing seems too painful haha
"You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do." ~ Eleanor Roosevelt
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Postby koopico » Mon Dec 13, 2010 9:26 am

Stabilo--as you said, you've been through childbirth--so you can handle pain!
And you got your sleeve done in a six hour session--wow-you're good to go!

Surgeries and other "pain-situations" have not resulted in relapses for me. I've had plenty, but never as a direct result of having pain!


Get your new tattoo--and enjoy!

:D
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Postby Stabilo » Mon Dec 13, 2010 12:15 pm

Thanks Koopico :) you are always there to reassure me ;)
"You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do." ~ Eleanor Roosevelt
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