This Is MS Multiple Sclerosis Community: Knowledge & Support

Hey all just curious as to whether MS and Meniere's commonly coincide?? My major symptoms since MS dx are vertigo and lately some hearing loss....I have a second hearing test coming up to find the cause but the first Dr. said she believes it to be my hearing nerve......

Anybody know much about Meniere's or have it, that may be able to clarify?

Thanks

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"You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do." ~ Eleanor Roosevelt

Here's an earlier thread on Meniere's and MS...
hope it helps, Stabilo-
cheer

http://www.thisisms.com/ftopic-10856-0- ... rasc-.html

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Yes, My last few attacks were vertigo and jumpy vision. I actually think I have meniers alongside with MS.
Since I have had my neck treated (CCSVI) although I think it is still blocked and been on blood thinners etc my vertigo has gone and eyes are not jumping up and down all the time anymore although I still have some nystagmus x

I'm pleased to read that your eyes are not jumping up and down all the time. My other half has major issues with that. He has also tested postive for CCSVI so were hoping that the treatment will help that symptom too..

I suddenly had vertigo and blocked year and the doctor gave me Betaserc. He said temporary Meniere syndrom, but the neurologist thinks is an MS attack. Don't know what to think. Under the treatment for 3 weeks it got better, then suddenly got worse again.

My father had Meniere's but I'm the lucky MS pioneer in my family on both sides as far back as anyone still alive can remember. He had decreased hearing in one ear, ringing in his ears at times, and occasional vertigo. It always got him excused from jury duty and he refused meds (Antivert) and lived with it.

I've heard others on the board say they have it too but with my MS came a 24/7 high pitched loud noise, not a ringing, hard to describe. I am unable to experience silence and have to have background noise like a radio on for distraction or the noise would drive me crazy. I've wondered if I hear normally or not.

The common factor of Meniere and MS is a big stenosis in the IJV behind one of the ears; nothing autoimmune.

Would the MRIs done working someone up for MS show the internal jugular veins or is it ultrasound that is better?

The MRI could show the stenosis if the settings are appropriate (MRV).
The echo-Doppler could also do the trick, but it requires skills and a special pod.

sorry, I did not see it before but Joan's posting of 28 March 2010 http://www.thisisms.com/ftopic-10856-0- ... rasc-.html refers to jugular blockages as well. This seems to confirm my believe that the common factor in Meniere and MS is a stenosis in one of the IJVs, more in particular behind the ear, and possibly combined with a hardening/calcification of the veins at old age.

From Joan's posting:

Quote:
The author describes the case of a 68-year-old woman who experienced severe symptoms of Meniere's syndrome. Ultrasonography of the neck detected a clot in the left internal jugular vein. The patient was hospitalized and anticoagulated, and her symptoms soon resolved. The author speculates that the clot-induced hemodynamic changes led to venous insufficiency in the vein of the paravestibular canaliculus and ultimately caused the patient's symptoms. The blood work-up revealed that the patient had an elevated fasting homocysteine level, which is a known risk factor for thrombus formation.


http://www.highbeam.com/doc/1G1-111111836.html

cheer

I never saw the previous Meniere's thread -- thank you, Cheer. One of my first symptoms was *severe* vertigo/nausea (made me fall out of my chair), and I had a doctor tell me a few years ago if I didn't already have an MS dx they would say I had Meniere's. I have had ongoing loss of hearing and bouts of vertigo/vomiting.

During my actual CCSVI procedure, I could feel the moment my hearing *suddenly* improved, and I was awestruck. I had incredible relief of vertigo and nausea and have actually felt hungry for the first time in years because I don't have that constant seasick feeling.

After a few weeks my crystal clear hearing began to get weird again, but there was no doubt there was a connection. I am eager to repeat the procedure.