Nice story

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Nice story

Postby bromley » Wed Oct 19, 2005 1:11 am

A nice MS story - for a change

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Postby kitkat2 » Wed Oct 19, 2005 5:30 am

A real motivating story, with contacts/ phone numbers!! It just proves that we all must be our own advocates in ms treatment options.
She and I were dx'd the same yr and are the same age.
Now I know that stem cell therapy is not simply a pipe dream.

This is great news! Thanks, Bromley!
Holding out hope for Liberation!
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Postby Jaded » Wed Oct 19, 2005 12:31 pm

It is great news - thanks Bromley. Especially good that she is getting better all the time.

How can they do this in Holland but not in the UK or US???



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Postby bromley » Thu Oct 20, 2005 12:37 am

Jaded,

The Dutch have always been happy to push the boundaries - e.g. bars where smoking pot is allowed. I assume the clinics who administer the treatment are government approved. There are clinics which offer similar treatments in eastern Europe e.g. Urkraine but I suspect that they are not regulated or as regulated. The story of the lady from Liverpool is a sad indictment on the limited progress that has been made in MS treatments - in the UK if you are SP or PP you are told to go home and get on with it.

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Postby SarahLonglands » Thu Oct 20, 2005 2:29 am

Yes, "my" neuro's exact words were "Go home, read what you can about your disease then wait for it to take its course." Well, I've never been one for doing what I was told if I thought it was wrong. :(

Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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