Nice story

If it's on your mind and it has to do with multiple sclerosis in any way, post it here.

Nice story

Postby bromley » Wed Oct 19, 2005 2:11 am

A nice MS story - for a change

<shortened url>
User avatar
Family Elder
Posts: 1888
Joined: Fri Sep 10, 2004 3:00 pm


Postby kitkat2 » Wed Oct 19, 2005 6:30 am

A real motivating story, with contacts/ phone numbers!! It just proves that we all must be our own advocates in ms treatment options.
She and I were dx'd the same yr and are the same age.
Now I know that stem cell therapy is not simply a pipe dream.

This is great news! Thanks, Bromley!
Holding out hope for Liberation!
User avatar
Family Member
Posts: 61
Joined: Sun Sep 25, 2005 3:00 pm
Location: MN/USA

Postby Jaded » Wed Oct 19, 2005 1:31 pm

It is great news - thanks Bromley. Especially good that she is getting better all the time.

How can they do this in Holland but not in the UK or US???

Family Elder
Posts: 284
Joined: Tue Jul 26, 2005 3:00 pm

Postby bromley » Thu Oct 20, 2005 1:37 am


The Dutch have always been happy to push the boundaries - e.g. bars where smoking pot is allowed. I assume the clinics who administer the treatment are government approved. There are clinics which offer similar treatments in eastern Europe e.g. Urkraine but I suspect that they are not regulated or as regulated. The story of the lady from Liverpool is a sad indictment on the limited progress that has been made in MS treatments - in the UK if you are SP or PP you are told to go home and get on with it.

User avatar
Family Elder
Posts: 1888
Joined: Fri Sep 10, 2004 3:00 pm

Postby SarahLonglands » Thu Oct 20, 2005 3:29 am

Yes, "my" neuro's exact words were "Go home, read what you can about your disease then wait for it to take its course." Well, I've never been one for doing what I was told if I thought it was wrong. :(

An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
Family Elder
Posts: 2194
Joined: Thu Jun 17, 2004 3:00 pm
Location: Bedfordshire UK

Return to General Discussion


  • Related topics
    Last post

Who is online

Users browsing this forum: No registered users

Contact us | Terms of Service