Primary Progressive MS: seems to be almost a different disease in the people I've met. We have a couple of our members(PPMS) starting with a naturopath and I'm interested to see if they will get a positive response. One thing I have noted is so many of our group give up after a few weeks or months into a game plan and will not go the distance to see if they will benefit from a few simple changes.
Some researchers believe that inflammation may have a role in saving axons / nerve tissue!
That statement could be a tad scary as I'm totally committed to reducing inflammation I'd hate to find later I'd done more harm than good. I also am not frightened of boosting the immune system although I've read so much that says that is not a good idea. I guess once again it's back to how well you know your own individual system or in my case (hubby's) to know if something should be eliminated or if you see benefit from it being added. I have both MRI's done 7 years apart can I be taught how to read them to see if I feel there is any atrophy occurring
. Here is what Dr. O'Connor said for the MRI. The MRI in 1998 showed a possible lesion at (Actually have to check which) which has now been confirmed. Just as a note we are seeing Dr. Lee at Sunnybrook now and he seems to feel lesions aren't indicative of progression and goes more on what hubby is feeling.
Dr. O'Connor:His MRI is of interest in that he has only one TS hyperintensity in the white matter (June 6 2005) adjacent to the left posterior horn of the lateral ventricle. However, he has lesions at C2, T2-3, T10 and T11. He therefore has a multifocal cord disease. There is a C6-7 right paracentral disc herniation with some compression of the cord but no abnormality in the cord signal.
John was diagnosed Jan 2005. On lipitor 20mg .On Copaxone since July 4,2005. Vitamin D3 2000iu-4000iu (depending on sunshine months)June 10 2005(RX::Dr. O'Connor) Omega 3 as well Turmeric since April 2005. Q10 60mg. 1500mg liquid Glucosamine Nov 2005.