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Postby aine » Wed Jun 01, 2011 2:49 am

i was diagnoised with ms in the 80's i havent taken any medicine only vitimins and ldn. i am doing very well at the moment and only use a stick when i'm going to be walking for a long time. other than I don't use anything.
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Postby gymbuff » Wed Jun 01, 2011 6:11 am

Hi aine

I hope that your mobility etc remain as good as you are at the moment. I stayed away from meds for 10 years and then went to a different neurologist who suggested that I start some medication. I agreed and started on betaferon and subsequently changed to tysabri. My progression is slow but I think tysabri is brilliant. I often wonder if I had started on meds immediately (20+ years ago) would I be better or worse now. Impossible to tell and because the course of the disease is differnt for all of us nobody will ever be able to say definitively. If you don't know how fast something is going how can you say whether it has slowed down or speeded up

Keep doing what you are doing for as long as you can :D
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Postby Wonderfulworld » Sun Jun 05, 2011 3:19 am

Hi Aine
are you based in Ireland like me? - just your name sounds Irish :) .
You sound like you are doing brilliantly, it is very heartening to hear of stories like yours.
Concussus Resurgo
RR-MS dx 1998 and Coeliac dx 2003
Tecfidera, Cymbalta, Baclofen.
EPO, Fish Oils, Vitamin D3 2000 IU, Magnesium, Multivitamin/mineral, Co-Enzyme Q10, Probiotics, Milk Thistle, Melatonin.
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