Lyme disease as the real cause of MS; an interesting read

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Lyme disease as the real cause of MS; an interesting read

Postby Loobie » Tue Jun 14, 2011 9:17 am

It is quite possible this has already been posted. Forgive me if this is redundant, but I found this article very interesting. Especially after watching the movie "Under our skin".

http://www.owndoc.com/lyme/multiple-scl ... -cover-up/
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Postby Kate925 » Tue Jun 14, 2011 5:50 pm

Wow! That was very extreme! I would be interested to read what others thought of it.
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Postby bartman » Tue Jun 14, 2011 6:00 pm

well you know what I think!
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Re: Lyme disease as the real cause of MS; an interesting rea

Postby HarryZ » Tue Jun 14, 2011 6:24 pm

And some people think that I'm the only one who doesn't like MS Big Pharma and the way MS has been researched over the past decades! After reading that article, I could be considered a "nice guy" in comparison :)

Harry
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Postby cheerleader » Tue Jun 14, 2011 9:02 pm

Hey Lew....
Under our Skin made me itch!!! yuck. I hate bugs....
For anyone that wants to know more, I highly suggest a visit to a Lyme literate doctor and the Ignenex test. Jeff was tested and found negative for bartonella and spirochetes....we ruled out all the MS differentials for him when he was diagnosed, including APS or Hughes Syndrome.
http://www.lymenet.org/

Lyme bacteria should not enter the CNS-- the blood brain barrier should provide protection. Some doctors, like Dr. Hubbard, think that neuroborreliosis is caused by CCSVI creating venous hypertension and endothelial dysfunction...allowing for a permeable endothelium. This would make brain tissue vulnerable to a slew of bacteria and viruses. And might explain the EBV, cpn and bartonella showing up in MS brain tissue.
something to think about,
cheer
Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
http://ccsviinms.blogspot.com
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Postby Loobie » Wed Jun 15, 2011 5:27 am

That's what I'm going to do Joan; find a lyme literate doc. That movie does make you go hmmm. Not necessarily about the connection to MS, since there are so many, but the fact that those guys on the IDS appeared to be going "lalalala! I"m not listening to you!" with the data. Some of those people's stories were just so sad and it made me think of how they must feel in Canada when they are told they CAN'T have the angioplasty done. Some of them who've been responding to the treatment for years got turned away. And to boot, the Dr. whose research this is all based on (Dr. MacDonald) has either died or has alzheimer's or something of the sort. I remember that from the end of the film. It's either that or he just quit! Not sure, but I really felt for the people who got their legs cut out from under them.
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Postby robbie » Wed Jun 15, 2011 5:44 am

i have CCSVI and responded unbelievable to antiobiotics maybe i have Lyme
Had ms for over 19 years now.
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Postby SarahLonglands » Wed Jun 15, 2011 8:38 am

Well, I definitely don't have lyme disease but I did have SPMS and responded extraordinarily to antibiotics. I did have a low rate of chlamydophila pneumoniae, though. This pathogen, being intracelluar for much of its life cycle is very hard to find, hence my low rates. I don't know if I had ccsvi, but I certainly don't now................Sarah
An Itinerary in Light and Shadow Completed Dr Charles Stratton / Dr David Wheldon abx regime for aggressive secondary progressive MS in June 2007, after four years. Still improving with no relapses since starting. Can't run but can paint all day.
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Postby Bubba » Wed Jun 15, 2011 8:40 am

Good read Lew. Make's ya stop and think. And yes, I do believe in conspiracies with things such as this and cancer. MS patients and cancer patients make a lot of wealthy people wealthier. It would devestate big pharma monetarily (sp) if there was a cure.
w/m 44
The problem comes with the decision of weighing the unknown with the unknown.
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Postby jenf » Thu Jun 16, 2011 5:43 am

I ended up having Lyme after being diagnosed multiple times with RRMS. The MS diagnosis never really "felt" right, so in my endless search for a correct diagnosis, I went to the NIH. They diagnosed me with MS as well. It wasn't until my older sister started having neurological issues and found out she had Lyme that it became apparent to me that the docs may have missed it in me (I had tested negative SEVEN times).

MS is so different in each of us... I, like many others, suspect that it will be eventually discovered that we're all suffering from various illlnesses that brought us all to the same diagnosis. Under Our Skin is a great
documentary. It's so scary to realize just how many are out there suffering.

My daughter, also suffers from Lyme (confirmed 10 years ago), and just found out she has Cpn as well. She had been diagnosed with Fibromyalgia, but a savvy LLMD has her now on the road to recovery.
Jen

RRMS - dx 06/09
LDN - 4.5mg 06/09-present
Copaxone - 06/10-09/10
Avonex - 06/12-06/12

Late Stage Lyme - 12/10
Too many meds to list!!

Remember, today is the tomorrow you worried about yesterday..
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