This Is MS Multiple Sclerosis Community: Knowledge & Support

I'm relocating to NYC this week and will be looking for new care provider who is highly collaborative with his/her patients (rather than just telling them what to do), who is supportive of complementary therapies, and who is part of a comprehensive clinic.

I have RRMS and am on tysabri, though I'll be switching off in the next year as I have JC antibodies. I'm also probably going to initiate helminthic therapy (along with whatever drug replaces the tysabri) and want provider who will be accepting of that.

any suggestions/warnings?

JD

I travelled to NYC from Calgary,Alberta,Canada to go to the International Multiple Sclerosis Management Practice. I have PPMS and here in Canada no one is willing to even try something experimental to help PPMS. So I found an article about how this clinic does intrathecal methotrexate for PPMS. Myown neuro wouldn't consider it so off we went.

I was treated extremely well at this clinic and thought my neuro, Dr. James Stark, was wonderful. We did thorough review and the methotrexate treatment.

We need to goback every 8-11 weeks for several months to see if this is stopping my progression. It is very expensive for us (not the treatment, the travel) but have been given no hope anywhere else.

Based on my experience i would have no hesitation in recommending this clinic and Dr.Stark. Good luck.

_________________
Kathy, 49 with PPMS,full time scooter.
Married to a wonderful man, mother to a darling 9 yr old boy

I've not had a great time with the NYU MS care center, but that's honestly more about paperwork issues, but I maintain that's just as important, I've heard good things about Columbia and Mount Sini, and that St Lukes/Roosevelt isn't as good.

Also you never said which clinic you were talking about.

Katecw,

How is the treatment working out for you?