I am new to this forum. I have just recently had a relapse and went through a three day course of steroids. It started two weeks ago with a three day series of migraines which progressed to a horrible burning sensation around my neck and head (may not sound very painful, but I could brush or touch my head for several days and had to keep cold towels on my head because it felt like I had burns on my head and neck), then a few days later I had the most dreaded thing happen, trigeminal neuralgia happen to me. It was literally a week of total hell (excuse the expression). I have sense not recovered. I have recovered from the pain and "symptoms", but I am left unable to function in life, no energy, extreme weakness everywhere, unsteady on my feet, nauseous, my face is drawn and pale and I look like a ghost.
I guess my question is, has anyone had this happen where you don't recover very quickly? I usually recover and feel much better after a week or two, but this time I keep thinking I will feel better tomorrow, then tomorrow comes and I feel the same. I am the mother of four and am very frustrated, hello? of course frustrated, but yikes! Just would like to hear of any similar situations or input.
Thanks so much,
Diagnosed August 2006, taking Rebif since November 2006