Did either of you ever find any way to provide quick or instant relief for it? Maybe a chiropractic treatment or exercises/stretches? Any sort of medication?
Jimmy did it run down your neck/back as well or was it isolated elsewhere?
I'm a bit ignorant as to why it happens, so forgive the possibly stupid questions. A friend of mine also had it when she was first Dx 3 years ago but it went away after some treatment.
Hi Jen, sorry you're dealing with this! I'll give you a couple links and a quote with definitions first, and then give my experiences. Although L'hermitte's is common in MS, it's not
exclusive to MS.http://www.mult-sclerosis.org/LHermittessign.html
(this is a good MS site)
L'Hermitte's sign describes electrical buzzing sensations in the limbs and body brought on by movement of the neck. These sensations are known as paraesthesia and include tingling, buzzing, electrical shocks, partial numbness and sharp pains. L'Hermitte's is most often triggered by lowering the head so that the chin touches the chest. The sensations usually only last for a second or two. It has been called the "barber shop" symptom because it is often evoked when the hairdresser asks you to lower your head when he or she shaves the back of your neck.
L'Hermitte's is associated with a number of conditions including arthritis, cervical spondylosis, disc compression, pernicious anaemia, tumours and multiple sclerosis. In many cases, the cause cannot be found.
Because the cervical spinal cord is a frequent target for multiple sclerosis it is a very common symptom of MS. Aproximately two thirds of people with multiple sclerosis experience L'Hermitte's symptom at some point during the course of their disease.
In MS, L'Hermitte's is an indicator of lesions in the cervical spine (the part of spine in the neck). Movement of the neck causes the damaged nerves (the demyelinated neurons) to be stretched and send erroneous signals. The symptoms can occur anywhere below the neck and many people with MS find that it moves around their body from one day to the next.
And there's always wikipedia for definitions.
I had a major bout of this that lasted for several months about 20 years ago. Along with every other weird incident at the time, I assumed it was due to a few whiplash injuries in my childhood (and maybe they were...). With me, when I bent my head down and to the right, I'd get an electric jolt down my left leg causing it to collapse out from under me.
Altho it lasted only a couple seconds at a time, it made crossing streets and parking lots pretty hazardous, while trying to look both ways.
I would forget to keep my head up, and zap! I got to kinda dragging my leg so I wouldn't fall. I didn't know there was a name for it until the day I was dx'd with MS years later and read about it.
This is why I started my major diet/strenuous exercise routine 20 + yrs ago - to make it easier on myself, to get around, and it worked! Or it seemed to. The jolts eased up right away and for many years I've felt only a tiny twinge when I bend my head WAY down.
Losing weight always makes it easier on your joints, back, & muscles. And one of the things I always do when exercising lying on my back, is keep a rolled up dishtowel under my neck where a chiropractor had found issues years before.
The towel was the chiro's suggestion about a completely different issue - when I woke up with a roaring noise in my head even longer ago. I assumed that was whiplash, too, since it changed with position and left after neck adjustments.
I hope you find something that helps, altho I'm not sure if what you have is actually L'hermitte's if you're asking how to "provide quick or instant relief for it."
With mine, it lasted 2 seconds at a time and stayed away as long as I wasn't moving my head.
General, long-lasting tingling & stuff could be something else. L'hermitte's is a very specific symptom.
My MRI report says "no spinal lesions" ,but does point out "cervical spondylosis" throughout my C-spine. So for me, maybe it's MS, but maybe it's not.