This Is MS Multiple Sclerosis Community: Knowledge & Support

I know that this is an MS forum however it's still good to post about advances in other neuro diseases and this looks very good as researchers from Northwestern University say that they've found the ''holy grail'' or the cause of ALS thats eluded scientists for decades as they discovered a defected protein found exclusively in ALS patients called Ubiquilin which is responsible for the health and maintenance of nerve cells (cellular recycling system) in the brain and spinal cord.

More to the story for those interested.

http://www.chicagotribune.com/health/ct-met-northwestern-als-breakthrough-20110822,0,4185292.story

Thanks Harry, I am interested.

Very interesting...anything that helps work out neuro conditions could help us one day.

yup just like every "break-through", more drugs

a misaligned C1 or atlas cause a brain nerves and muscle nerves disconnect
just like in MS.

realigning C1 can get all the nerves connected again

Civickiller,


Why alternatives are not researched baffles me. The MS Society raises money for research, but only medical related, what!!!!!! no alternative research, why not. To me it makes no logical sense at all. Why isnt any one brave enough to look outside the box.

It has cost me a mear 1,000 pounds so far to find out exactly what my problems now are. My Atlas, I now think that my spine misalignments may have happened due to me adapting my stance to avoid pain and falling over. Thats why you and me cant, walk for different reasons, but at the same time have one important factor in common, an iffy Atlas.

So my conclusions are we are all here for different reasons and factors, many many crossovers Atlas, Lymes, Candida, Lupus, CFS bung in stress or a traum either physical or psychological and what do you get a cocktail of a mess not ms a mess, then chuck in various drug side affects which also can mimic symptoms classed as ms. and there are other factors Epstein Barr link. You and I are not Doctors, Scientists or Neurologists, but we know our own bodies and its reactions better than any of them. They can tell me nothing except perhaps, maybe, possibly, its very unpredictable. What a load of utter rubbish. I dont work for a reason, I have now found what that reason is.

I wont sit down and be quiet like a good girl. I do not stand alone, I've got you, its a start just watch us finish!!!!

Fiona

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I do my own research, and find my own answers Its good to talk

Sounds promising.

I can't even fathom how buried in bias you have to be to see this as evidence of the evil drug companies. I guess buried so deep you think visiting a chiropractor would cure people of a disease that kills them in 3-5 years.

It is interesting research. We lost a really good friend to ALS in March....I agree w/Rainer. Our friend had regular chiro and physical therapy to help his deteriorating body, and he died at 49. And he fought that disease for 10 years, every day til the end. He mixed his last record using eye motion alone. He was an incredible human being...
link

Ubiquitin isn't really new, though...although this specific form of ubiqilin 2 seems novel. Don't know how Northwestern is taking claim to the discovery...this protein has been linked to ALS for awhile.
http://www.ncbi.nlm.nih.gov/pubmed/10675580

Here's the team in San Diego (where Ned lived at the end) looking at how to apply this research:
http://als.ucsd.edu/research/Pages/curr ... jects.aspx


cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

Some background reading on a related protein with a similar function, ubiquitin...

http://www.nature.com/nature/supplement ... #editorial


NHE

Rainer,

In the words of Robert Deniro "are you talkin to me" if you are then direct specifically ok.

Fiona

_________________
I do my own research, and find my own answers Its good to talk

Rainer,

I apologise, I'm at fault here. You see I forget how I was, and the degree of helplessness I felt. If suddenly I reverted back to 2 years ago, I don't think I would cope.

I had got to a desperate complex state of affairs. I suffered indignities that no man or woman should be subjected to.

I had to watch my children interact with others but not me.

When I looked in the mirror all I could see staring back was an old broken woman.

Life was like being outside the window looking in at everybody else enjoying life without me.

It was very hard indeed. for me to become so complacent is very arrogant.

for that I apologise to all who may think that. and that includes you.

so I am sorry

Fiona

_________________
I do my own research, and find my own answers Its good to talk

Firstly thanks Cheer and NHE for the posted links and i'm going to post these over at the ALS forum site (ALS-TDI) that i regulary frequent later on today !!
http://www.als.net/forum/default.aspx?g=topics&f=15

Secondly thanks Fiona for frequently posting about alternative ways and treatments etc. (yes i read your posts) as before i came down with CIDP (Chronic Inflammatory Demyelinating Polyneuropathy) since 1996 which has paralysed my lower extremeties i was a hard core (steroid free) bodybuilder during the 80's and 90's as i practically lived at the YMCA and GNC as i was very much into nutrition, fitness and longevity etc. and have studied nutrition extensively over the years and after some 15 years with this disease i believe it has kept me alive and not spread to my upper extremities etc.

I guess my thoughts about neurological research is that since current drugs/medicines are mostly crap (at least at this 2011 timeline) that people should look to try and slow down thier disease progression with diet, supplements and alternative healing practitioners etc. however at the same time many people like myself who've been paralysed for so long (15 years) and to which alternative diets and supplements haven't fully cured really do hope that science can advance to again function and/or regrow our nerves (ALS, CIDP, MS, Huntington's, Muscular Dystrophy etc.) as these nerve diseases are some tough ''Sons of B*tches'' if you get my drift

Harry 1,

Yes I do get your drift and I wud send you back a smiley face, but I havent figured that one out yet. it took me two years to work out how to do it on my phone.

Technology is not my thing.

Fiona

_________________
I do my own research, and find my own answers Its good to talk

the problem is the traditional chiro doesnt deal with correcting C1.

im not saying Upper Cervical Care can cure ALS, MS, or Parkinsons, maybe can, may be not but what i do know is, I havent met a MS person yet whos atlas wasnt off but again of course i dont know everyone with ms who saw a UCC dr. I always say at least see if you can benefit from UCC

i just know some of the improvements ive felt was way more than i ever felt on drugs.

no drug has ever cured anyone with a neurological disease, try find someone, drugs companies pay for what ever clinical trail which support drugs, again try find one, drug companies pay kick backs to neuro's for prescribing the drugs, proven. neurologist running ccsvi trails dont find ccsvi, results from buffalo trial, dr's that perform the surgery to correct find ccsvi in majority of MS patients, idk an exact %, i know its high with physical evidence showing ccsvi. that my beef with drug companies

heres alittle info uprightdoc found with als
http://www.upright-health.com/alzheimers.html

Civickiller,

You see at first I didnt realise not all Chiros deal with Atlas re alignment.

I always knew that I had a problem with my neck, I read aout subluxations, I looked into Noel Battons theory on aa case re Tiffany.
I also was interested in a procedure Montel Williams had years ago. that guy was so close. I think he needed continuous treatment, I can only presume that he didnt.

But if he also has ccsvi, that will be very interesting, as I believe the two go hand in hand.

Just my opinion, before someone jumps on my head.

Fiona

_________________
I do my own research, and find my own answers Its good to talk

Harry 1,

I have sent you a private message ok praps you wud like to pick it up sometime eh!

Fiona

_________________
I do my own research, and find my own answers Its good to talk