This Is MS Multiple Sclerosis Community: Knowledge & Support

[elizajayne]

New to the forum so please be kind. I've had MS for 17 years and I finally a med. that helps with the fatigue. The only problem is my insurance wont pay for it. I've been on disability for 5 years so I have medicare (humana) and medicaid. I contacted the drug company and they can't help ms patients because it wasn't originally approved for ms. ANY SUGGESTIONS? THANKS FOR YOUR TIME.

[civickiller]

i would recommend to get checked out by a Upper Cervical Care Dr, some UCC Dr's take medicare. i would never suggest drugs.
please check out the chiropractic forum on here and checkout the links inside the threads

chiropractic-treatment-f50/

*edit* i forgot to say about the energy it gave me- no heat sensitivity, no fatigue as opposed before UCC really bad heat sensitivity and fatigue.

[Cece]

I take nuvigil and it was one of the few things that ever made a difference for me with my MS. I am really sorry to hear about your insurance issues. How expensive is nuvigil out of pocket? What about the older provigil? There were supposed to be provigil generics coming out, which was one of the reasons nuvigil was released. Personally having been on both, I prefer nuvigil because it seems gentler. Provigil was a bigger 'up' but then it was not as consistent throughout the day and it interfered more with my sleep. But the differences were small enough that, if provigil was cheaper, I'd be ok with provigil.

Some pwMS have central sleep apnea too. You could get tested if you think you might. If you turned out to have sleep apnea, you could legitimately get a nuvigil prescription because it is approved for sleep apnea.