An Internet survey of MS patients reports that as patients worsen, they are increasingly likely to turn to the Internet rather than their neurologist for MS information (Miller et al. ECTRIMS 2011; abstract P178).
A total of 10,259 MS patients in the NARCOMS database were invited to participate in the survey. There were 5,446 respondents (mean age 52.7 years, mean disease duration 13.9 years, female 78%, on treatment 74%). The average Patient Determined Disease Steps (PDDS) score was 3.2, corresponding to gait disability without requiring a cane (for more on PDDS, see http://www.unitedspinal.org/msscene/200 ... teps-pdds/
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