This Is MS Multiple Sclerosis Community: Knowledge & Support

Dr. Terry Wahls' TEDx presentation on her research and recovery from MS:
http://www.youtube.com/watch?v=KLjgBLwH3Wc

and results of her study (funded by Direct MS) at the University of Iowa
http://news-releases.uiowa.edu/2011/nov ... study.html

cheer

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Husband dx RRMS 3/07
dx dual jugular vein stenosis (CCSVI) 4/09
dual stents placed 5/09
CCSVI in MS

I know an individual who was in a wheelchair and was diagnosed as being in the SPMS stage, smoked and drank almost daily, and is now walking with the aide of a cane. While he may claim it was because of the copious amounts of PBR he consumed I believe in all likelihood his "recovery" was due to the natural course of his MS or in fact he may have been experiencing a relapse and not in fact been in the SPMS stage. Something I have seen over and over again, since being diagnosed with MS, is individuals choosing one form of treatment. lifestyle change, etc. and immediately associating any disappearnce/improvemnt of symptom(s) as related to that specific modification. That said I can not see where eating healthy, exercising, etc. would not be of benefit including to PWMS. It will be intersting to see the results of the randomized studies when they finally come out!

I think these people are on to something. There is so much that is unknown about this disease. Doctors cannot tell us "why" we get it. Why does this person get it and this person does not? Why does this person go 30+ years and this person gets it at 18?

There is no cure for it yet because people just don't understand it. That's what is so hard about dealing with it is that the future is so unknown. When I went to the neurologist all they could do is send me home, possibly prescribe injections and tell me to contact them when (not if) I get worse. That brings little hope, but the private research and experiences people are reporting as individuals do provide hope.