Taurus wrote: Please see if you could get hold of Neltrexone for LDN. Further CCSVI is real. Please get yourself checked, if u can.
Hi Laowai and welcome! I just have to add a quick clarification to the above statements: I think Taurus is suggesting that you try a prescription for LDN, or Low Dose Naltrexone
, which is a weak version of a med that is used by some patients off-label for MS symptoms. There's an LDN forum here, but there has been very little research about its effects, so most of the reports are anecdotal.
As for CCSVI, there's a forum for that here, too. It’s a BIG forum, with lots of discussion on a new, under-investigated vascular treatment approach that’s fraught with controversy and confusion. Even the doctors with the most experience disagree on standards for how to either test for CCSVI or treat it. So…the comments to a forum newcomer that "CCSVI is real" and "get yourself checked" may not be especially helpful in explaining an extremely complex issue.
(See the CCSVI Forum for info.)
Reported results (still mostly anecdotal) from those who have been treated for CCSVI vary from no change, to some improvements (often minor ones) quickly gained - quickly lost, to longer lasting improvements (often minor ones), to serious injury. There are few places even in the U.S. that do the testing/treatment, let alone China.
Neither LDN nor CCSVI testing/treatment are even options
for me and I live smack dab in the Midwest of the U.S. It’s really funny, though, that right after you posted this the other day, an American professor (who has a daughter with MS) came into my office extolling the virtues of a Chinese acupuncturist (office only 2 hrs away) where his daughter is headed and gave me the number. A quick TIMS "search" for "acupuncture" gives 270 posts here.
As for LDN, the last doc I asked for LDN fired me as a patient with a certified letter. Plus I progressed to using a cane for the first time midway through my year on LDN. And CCSVI? The few clinics that do testing, treatment, or follow up are hundreds of miles away from me.
So, now questions for you. How did you get your initial diagnosis of MS? Did you have brain lesions at that time? Do you have copies of your reports? Diagnosis can be difficult and questionable without the telltale signs of brain or spinal lesions. (Once again I’ll post a link to my MRIs, with ‘classic’ MS lesions. general-discussion-f1/topic16335.html?hilit=tumefactive
I have good friends where I work (a university) who were born, lived, worked, or traveled recently in China (some are there now) and it seems they’re often without internet access, so you may not have many replies from posters currently in China. I'll be glad to ask around and see what they say.
But anyway, welcome and keep posting and asking questions. There are new posters here every day. Good luck!