hey there sorry to hear about your troubles.
afaik when they do the spinal tap they're looking for a couple things - 1) for oligoclonal banding or 'o-bands' in the CSF and compare it to the findings in serum. 2) they also look for things like elevated IgG etc. these are markers of chronic inflammation i believe, whereas when they do MRIs they're looking for hyperintensities indicative of lesions. are you going to have the lumbar puncture done? or did you already?
since nutrition is my thing, just looked up your dx with nutrition in mind and ran across this study:
Central Retinal Vein Occlusion After Intense Exercise in Healthy Patientshttp://journals.lww.com/retinalcases/Ab ... nse.4.aspx
"Purpose: To report a case-series of central retinal vein occlusion that occurred in young, healthy patients after periods of intense exercise.
Design: Retrospective chart review.
Methods: Seven eyes of six patients with central retinal vein occlusion after exercise were assessed. Visual acuity, intraocular pressure, and physical examination evidence of neovascularization were recorded on presentation and follow-up visits. Some patients had optical coherence tomography done on both initial and final visits and some had only one optical coherence tomography performed. One eye had no light perception at the time of diagnosis and was excluded from statistical calculations involving visual acuity.
Results: Patients were all males without any significant medical history. All patients had complete blood work, including hypercoagulable workup. Results were normal and no underlying cause was ever identified. Mean age was 37.6 years. The mean duration of symptoms before examination was 12.4 weeks. The average time that patients were observed was 170 days. On presentation, the average logarithm of the minimum angle of resolution value and standard deviation of visual acuity were 0.113 ± 0.198. The decimal acuity at this time was 0.83 ± 1.98 lines with the Snellen equivalent of 20/28.33 ± 1.92 lines. The average logarithm of the minimum angle of resolution value and standard deviation of final visual acuity were 0.081 ± 0.179. The decimal acuity was 0.9 ± 1.79 lines and the Snellen equivalent was 20/25.6 ± 1.79 lines. Mean intraocular pressure was 16.9 with standard deviation of 6.025. Range of intraocular pressure was 7 to 30 mmHg. Central retinal thickness as measured by optical coherence tomography ranged from 200 to 700 μm. No complication developed as a result of central retinal vein occlusion during the follow-up period.
Conclusion: Central retinal vein occlusion may occur in young, healthy patients after intense exercise. The exact precipitating event is unknown, but may be a combination of factors, including transiently increased intravascular and intraocular pressure, dehydration, and increased blood viscosity."
"Mineral status also seems to have some effect on blood rheology because it has been found that athletes with low serum zinc and iron have a higher blood viscosity."
any chance that makes sense in your case? looks like low zinc is something that crvo and ms patients have in common. ms patients tend to be grouped in the low end of the normal range for serum zinc.
just an fyi, zinc and iron tend to be found in the same foods so if you're low in one you could also be low in the other. if you supplement just one or the other, one will increase a lot while the other gets driven down. if you supplement both carefully, levels of both come slowly up.
there are a bunch of other nutrients you could look at if you like - things that are typically off in ms patients, and more generally may be sub-optimal across modern developed society, with a variety of possible results depending upon the individual. hope that provides a little food for thought. if you're not interested there's tons of other material here, but if you want to know more i'm available to answer questions.