CureOrBust wrote:I use two different Neurologists, at two different locations. One of them is Prof John Pollard, who is very well respected within the "establishment" of MS treatment, worldwide; I think he also won an an award from the Australian Govt a few years back. When I first brought CCSVI to his attention, he quickly dismissed it because of its lack of backing within the (his) accepted group of respected neurologists.
What gives me GREAT hope here, is that Barnet shares an office with Prof Pollard and has shared credit on published papers, and now Barnet is obviously speaking with Zivadinov. I would be surprised if Barnet and Pollard do not speak about things like this "around the water cooler". Its not in your face CCSVI, but I think its small "leakage" like this that has a great potential to bring CCSVI research into the realm of the "respected" neurologists.
Exactly, Cure! Barnett discussing the reasons for gray matter atrophy with Zivadinov is encouraging. The fact that Eliot Frohman, who was at the first CCSVI conference and collaborated on this gray matter study, is another interesting development. BNAC has been publishing some important research on the changes that happen after venoplasty---one presented at ECTRIMS showed increased cerebral spinal fluid flow in all pwMS treated with venoplasty. http://registration.akm.ch/einsicht.php ... KEN_ID=900
I'm sure they are monitoring gray matter, as well.
It was Dr. Frohman who mentioned how much normal pressure hydrocephalus (NPH) reminded him of CCSVI at that very first conference in Bologna in 2009. Stagnation of CSF is related to gray matter changes, indicated by the enlargement of the third ventricle.
And BNAC is at the forefront of looking at how gray matter is affected by the DMDs (supported by Biogen)--using 7 Tesla machines. http://cme.bnac.net/index.php?s=8
This studying MS pathogenesis as neurodegeneration, iron deposition, inflammation and deep gray matter loss, with myelin loss a secondary or concurrent event, is gaining more ground.