Search, I'm enjoying your posts, although I must admit I don't understand a lot of it, there is just so many paths and influences. I'm quite sure I had the psuedo-gout. My knees and hips ached and were very bad when I was at my worst. X-rays showed nothing (a rheumatologist looked at them), but if the only way to truly see the crystals is by biopsy then how would they really know.
All I know is when I had blood drawn off in the beginning the effects were almost immediate, I felt light and my joints moved freely. My fatigue melted, I felt quite high. I'd slowly go downhill until the next blood draw (or having a menstrual period
also helped, always has).
I have always had trouble consuming alcohol, especially wine & spirits (beer is sort of OK in moderation). I get violently sick at times after maybe two glasses, so I just gave up alcohol years ago , there was no point as The chance of being ill was about 50/50 and it spoils the party!.
Anyway, I'm confused as to whether the improvements in my monthly episodes were due to the hormones or the blood loss, or a combination. To complicate things I'm more than likely entering menopause now.
The proof has been that now I have my iron levels (especially transferrin saturation) down, I'm
feeling better than I have in years and years, it's like getting the iron down stopped the hormones affecting me so much. Joints good, monthly cycle moods under control, debilitating fatigue gone (I used to pass out every day for hours). And of course no more brain events. I even had an attack of chorea two weeks after my first blood draw. I still have the hyperpigmentation on my arms that showed up when my iron got high. It's really blotchy and looks a bit like liver spots. I think my liver is OK, but how do you really know.
This is the only tests I've ever had for my liver in 2010
Total protein 70 g/l
Albumin (serum) 44 g/l
Globulins (serum) 26 g/l
Bilirubin (total) 11 umol/L
GGTP: 19 IU/L
Alkaline Phosphatase 64 IU/L
ALT: 16 IU/L
All normal from the looks of it.
On the other hand this is my CBC in 2010
Hb 163 High
HCT .485 High
Red Cell 5.17
MCV 93.8 fL
MCH 31.5 pg
Platelets 402 x 10*9/L
White cell 15.4 High
Lymphocytes 6.9 High
Monocytes 1.4 High
Comment: occasional acanthocyte present
I had a nasty rash come up not too long after this blood test.
I had it biopsied and it was called Pityriasis Lichenoides where lymphocytes
come out of your skin in blisters and leave brown marks.
It cleared up fast and I haven't had it back, a couple of months after
that I sweated blue under my armpits for a week, and felt heaps better all round.
Very weird stuff you must admit. I think they call it lipofuscin.
My stained clothes were sent to a lab in Australia.
The brightest blue you ever saw!
My latest CBC in Jan 2012 (after 5 more pints of blood taken)
Hb 150 g/L
Red Cell 4.92
MCHC 336 g/L
Platelets 499 HIGH
White cell 9.7
Lymphocytes 4.9 HIGH
Comments: Red cells show hyposplenic changes
PS: I have no spleen because of a car accident as a youngster.
I really do feel I'm out the other side, but press trying to find out what the hell happened to me, in case I can help my sister in some way. I'm even starting to think she may be better off than she could have been BECAUSE of her good iron supplies. She has had MS for so long and she's still functioning, working, walking and living a reasonably good life. But at what point does iron become toxic. At lower levels than most Dr's think I believe.