This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi guys well over the past 2 months I've been having similar symptoms as MS. It all started when I got back from a ski trip in Utah and two days after I got back I was home alone sitting On the computer and I could slowly feel my breath fade to where I couldn't even take deep breathes and gaspIng for air. I called 911 and they. And out checked everything and it was fine. The next day I woke up gasping for air and eventually got my air back but I went numb in my WHOLE BODY (arms,chest,legs,head,back,face, you get the point) later that day while breathing through my nose I wasn't getting enough air and panicked again and couldn't take deep breathes. This time I went to hospital and he did blood work and a EKG, everything was fine they thought it was asthma,( its not ).
The following days I still have trouble breathing and would get numbness/tingling in random spots but mostly legs and hands and head. A week Pasts and I'm fine not thinking about it much and felt pretty normal. Well after that week was up I developed a stuffy nose,shaking,head pains and face pains,6 bloody noses,heat sensations in my head also popping ears,ringing ears,dizzyness,eye bluriness in right eye,and prob more I can't think of over the past 2 weeks I developed those symptoms.feeling so bad I go to a fam doctor and he did blood work and found out I had walking pneumonia and also diagnosed me with acid reflux and gave me pills, on our way to pharmacy I was breathing through my nose and idk what happend but I Panicked and then started shaking really fast for about 5-10 mins so I'm guessing that was a panick attack. And while it was happening I couldn't get any air while taking deep breathes. NOw that I got my medicine for pneumonia i take it for a few days and can begin taking deep breathes better. so I thought I was getting better. During this time I was burping do much it was crazy. Also during this whole time I would look up symptoms for what I have and it would freak me out. Since I'm still burping I go get a egd done where they put That scope down your throat.
Well that was normal but I was still burping even when on acid pills. So doctor prescribes a ulcer treating medicine for my burping even though I don't have a ulcer but the medicine helped right away. But he next morning when I woke up I was really dizzy and once again was unable to take deep breathes. I would get dizzy before this. It it would come and go. Just like my inability to take deep breathes. I am now off be medicine not takIng any medicine other then for my nose congestion cause I get aches in my head and constant headaches for around a month also with ear popping and some ear pains. But for the most part my head pains went away but my eyes are bothering me sometimes. I went to eye doctor and they said my eye bluriness was from allergys, but I've never had allergys before so... But idk why my ears are still popping and head still stuffed up with numbness in my face and aches also with trouble swallowing. But the big things that make me think it's MS is the numbness in my body, not just feet and hands but also leg,nose,lips,chest and when my legs get numb they go very weak, I can walk on them but just feel weird. Also when the numbness is here it usually only last between 2-20 minutes. Also Ive had problems before I have to use the restroom I would get sharp pain usually when I have a full bladder or have to pass gas. Another is my eyes, at one point I would see red lines,dots when ever I blinked and also yellow, next is dizzyness, for 5. Days now I've been extremely dizzy even when sitting down, best way to describe it is everything seems weird and also I sometimes loses balance. I used to come and go but now it's been here for 5 days. Also I've had 2 incidents where I had uncontrollable laughter for like 2 min I was laughing at a joke but couldn't stop. Next is my muscle spasms I get them everywhere my arms my legs my chest my stomach my neck my back, I just don't know what to do anymore if this is anxiety mixed in with like acid reflux which wud explain burping and shortness of breathe. If I need a secondary dose of antibiotics for pneumonia? If its multiple sclerosis which scares me to death cause I look at symptoms everyday and they all like what I have now but I'm only 17? I don't get how it wud come right after I got back fine when I was fine the week prior! So please help me what u think it is? Sorry for it bein so long.

when i read ski trip right away i'm thinking possible trama's to the spine and there's probably no better than dr. flanagan "upright doc" right here at tims in the ccsvi section. you might want to ask him some stuff. could be you got a double whammy of pneumonia and spinal issues.

Well I did fall on my face and my body jerked forward to a frontflip and my back hurt for maybe a hour but that's it. I get occasional spinal pain but very rare. But what do you think I would have? Anxiety,ms, Something else causing all these symptoms,I'm freaked out right now cause every Symptom that I look up for ms I have.

welcome, belkin - sorry to hear you've been having this scary time, sounds really nasty.

anyway i had my first attack after wiping out on a snowboard. that was at the beginning of '06. i suspected nutritional problems, did a lot of studying and bloodwork, confirmed several deficiencies and sub-optimal levels, plus started a major dietary overhaul. long story short yep i did some apparently permanent damage to my spinal cord but other than that i'm fine now. i was a complete train wreck in 06/07. i couldn't even wash my own hair.

so now i focus on nutrition for ms (and pretty much anything else too).

that means, no matter what is wrong, i'm curious about your nutritional status as a place to start (while you continue to work on getting answers). how would you describe your diet and lifestyle? in my case, i used to be a vegan and one of the first things i had to do was a complete 180 on that behaviour - straight into eating red meat, fish and eggs for the protein etc. there are a lot of ways that people can look normal but be 'misnourished'. eventually the wheels can come off. any possibilities that your nutritional status is not the best?

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my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

hi again belkin, good nutrition can never be bad thing. and for some it seems to be the answer. in the mean time i would "strongly" urge you to pay a lot of attention to your spine. especially the upper cervical. dr. flanagan may be able to help explain some things to you. more and more research is pointing to spinal issues in the involvement with ms.

my symptoms started after a very bad fall-20 yrs. ago. went to chiro.'s "later found out not all chiro's are the same" i sought surgical care but it was even more in the dark ages back then. once some dr. decides to brand you with a diag. such as ms neurosurgeons and other dr.'s pretty much put about any health problem you get that it's the ms doing it.

now, i'm older, the spine is so much worse, i'm worse. but i'm still seeking the right neurosurgeon to help me.

but you, 17 yrs. old, you are gonna have a much better shot at bouncing back. so much more is known now. especially with the upright mri's becoming more available.

i feel that it's more than a coincidence that so many have trauma's and go on to be told they have ms or parkinsons etc.

My diet is um i mostly junk food lol, i mean im really skinny im only around 110 at age 17.. lol.. My diet has not changed though i still ate the same stuff when i like to call "normal" I went to the doctor to day for my dizziness and also brought up my other symptoms, but she really didn't say much cause she was only a P.A not sure about some of my symptoms. (no disrespect to P.a's) I also have a counselor appointment tomorrow and im sure they will get down to the core of why im having anxiety numbness,tremors.. ect if its even anxiety! Thanks alot for posting back

heya belkin,

nutritional problems can be pretty stealthy. i got away with my poor food choices, even though it was all individually wholesome and nutritious, for about 15 years. and then the wheels came off, and i had to learn.

people with vastly different eating habits can still end with the same collection of nutrional problems that researchers have repeatedly found in ms patients.

here is a short list of some really important ones to get you started - you might want to propose tests of these nutrients to your docs:

serum vitamin D3 - the correct metabolite to test is 25(OH)D3
serum vitamin b12
serum magnesium
serum zinc

junk food is not a notable source of any of these components of the human body. also the tests are likely to come back 'normal' - that is not good enough. the 'normal' range includes both sick and healthy people. if you get these tests done and bring the results back i can help you figure out a regimen to get your levels into the optimal range.
for additional reading you might want to check out my signature links. by the way i think you could probably fix your anxiety and tremors with magnesium GLYCINATE. (other forms of magnesium supplements - for example 'natural calm' which is magnesium citrate) are more difficult for your body to absorb so you can end up with the runs). for future reference, spinach and swiss chard are excellent dietary sources of magnesium.

a couple years ago, i suggested my boss take magnesium to prevent menstrual cramping and she came to me later and asked if it could make her feel more calm. answer, yes. she commented to me a few months ago that it had really surprised her that the anxiety she had thought was just her basic personality, was actually a nutrient deficiency.

also, an interesting study (involving rats though), given the trauma aspect (experimental trauma, ick):

Effect of magnesium given 1 hour after head trauma on brain edema and neurological outcome http://thejns.org/doi/abs/10.3171/jns.1 ... alCode=jns
"The present study indicates that postinjury treatment with Mg++ attenuates brain edema formation and improves neurological outcome after experimental CHT."

hope you find this useful ttfn

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

i agree with jimmylegs about diet and supplements. and, i take my hat off to her on her knowledge and expertee. one thing eating healthy will do is strengthen you and your bones and all the things jimmylegs speaks of. this is all good and the sooner you pay attention to what you put in your body the better you are for it.

but, keep in mind as you do all this that if your spine is misaligned-it is misaligned. and if not corrected it as a rule will only cause more problems such as a lot of the symptoms you speak of.

close your eyes and picture a nice straight spine-everything flowing good all the nerves freed up to send their little messages. then picture a spine that has a twist or a turn in it-kinda causeing chaos with all the things that it's designed to do. and remember that we are all different. for some, for some reason they have injuries and don't develope so called ms symptoms. but with the differences we all have say the space between a vertabra some may have a body that allows a margin of error but some may not. then you have problems and the sooner you get your spine checked out and corrected the better. when you are looking things up - look up chiro. and ms this will be a start. go to "uprightdoc.com" get as informed as you can from every angle. it's your body and you'll have it a long time. ---------

Walking Pneumonia is also known as Mycoplasma Pneumonia. Mycoplasma is a common co infection with tick borne illness such as Lyme Disease in fact has been found in ticks so can actually be passed on by them. However mycoplasma can be found in many of the population although not necessarily causing such severe symptoms as you have experienced.

I come a Lyme Disease perspective and would encourage you to look closely at the available literature on that from such as http://www.lymediseaseaction.org.uk/ resources and guidelines you will be surprised how closely all your symptoms relate to a Lyme Disease infection. However you responded to antibiotics well by the sound of things but as symptoms have returned after antibiotics ended I think that is your best clue. If you respond on antibiotics and deteriorate off them then you need to seriously consider taking longer treatments.

There are many infections that can remain as stealth infections difficult to test for because testing is poor but able to treat on long term antibiotics in order to regain our health and our life.

Interestingly more and more doctors are finding this and a term recently coined was MCIDS Multiple Chronic Infectious Diseases Syndrome more recently prof Luc Montagnier Nobel prize winner and long time HIV researcher has been talking to French TV about this - many chronic illnesses are due to stealth underlying infections but with poor testing abilities, often more than one and needing in some cases long term antibiotics or other therapy. I posted an English translation on my blog with links to the TV interviews http://lookingatlyme.blogspot.co.uk/201 ... gnier.html

Lyme Disease is being found to be the underlying cause of many chronic illnesses and especially MS to quote one very important Lyme Doctor
' Never underestimate the danger that can be done by Tick borne disease and never underestimate the healing that can be done with the right treatment.'