This Is MS Multiple Sclerosis Community: Knowledge & Support

Hi everyone,

I am new to this board and I have had some troubling symptoms and am wondering if any of you could shed some light on the situation.

About a month ago I experienced my first episode of trigeminal neuralgia. Had a few bouts and lasted two days. Just last weekend I had it again, several more times than last time. Then about 24 hours later I started to experience tingling/pins and needles on one side (opposite side to the neuralgia). Over the week I have experienced intermittent tingling, pains like I've been stung by a bee on my fingers and toes and general relaxed/tired feeling in the arms and legs. I saw my gp, and then the neurologist who both did a thorough exam and could not find any problems. I also had an MRI and that was clear. I am awaiting blood test results. I had a thought it could be shingles but the rash I have is only right in the centre of my chest. I am 33 years old.

Do you think I have anything to worry about?
Thanks in advance.

hi stella, did the docs say anything about lyme disease? where do you live?
case study report:
Trigeminal neuralgia as a clinical manifestation of Lyme neuroborreliosis
http://www.springerlink.com/content/h4416p15r0644313/

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Stella,

Google ; dr windman atlas - you will find trigeminal neuralgia is a symptom. Also a misaligned atlas can cause sensation problems elsewhere in the body. Its important that you are not given loads of unnecessary stuff to read, filling your head but this is relevant I cant post her full article or link because of copyright.

Hope it help as trigeminal is classed the worst type of pain anyone can suffer. I could also point you in the direction of chiropractic board, in treatments section, there is a post on there regarding trigeminal and fibromyalgia and a post by Dania that gives a detailed diagram of the spine and how it affects the body, that is also good good,

Dux

also stella do you know exactly what tests the docs are running in terms of bloodwork?

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

found an interesting overview of TN stella - any clarification re what subtype you could be dealing with? ie do you have an msdx and therefore this would be likely the ms-associated subtype?
http://www.umanitoba.ca/cranial_nerves/ ... types.html
nothing on lyme disease here by the way - although lyme did crop up when i was scouting about earlier on google scholar though, hence the mention above

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Stella,

Yes lymes could be a contender, if you are in a high risk area, or a Vet and if you have a target style bite mark, but it wont cause trigeminal neuralgia. ok there is no proof that it does ok


Dux

a more detailed read on dx-ing TN. looks possible that this paper provided some background info for the umanitoba page above..?
Role of patient history and physical examination in the diagnosis of trigeminal neuralgia
http://www.arscerebri.com/ucsd/useful/n ... 18-5-1.pdf

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Hi,

I am from Sydney Australia. The tn is along my upper cheekbone and in the temple.

Sorry I should have e clarified, the neurologist does not think I have ms, I just posted here because I thought my symptoms seemed to mimic ms in some ways.

Thanks again

hello there! i have to ask now if you've read 'playing beattie bow' - when i was in sydney i was wishing i had my paperback copy in hand

ok thx re clarification.

can you tell me any more background health stuff, even minor things that have bugged you forever? that could help flag a broader issue.

just to give you an idea of where i'm going, i know there's the type of TN where blood vessels press on the trigeminal nerve, so i'm looking at vasospasm as a possible connection. if you are used to cramps, aches, pains in other parts of your body, or cold/discolored extremities, and - on another tangent entirely - general past skin problems either like or unlike your current rash, that's the kind of thing i'm hoping you could tell me.

to answer your original question, i think everyone should pay attention to messages from their bodies, but it's very hard for me to say what could be at the root of your particular constellation of symptoms right now. we might be able to tease out some ideas if you feel like chatting in more detail. i have a very specific approach and i'll say right off that i'm not coming up with anything glaringly obvious in the research, only case studies, which is why i'm asking for more detail - only if you feel like sharing.

take care

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

meeeee (and my pal) lol

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

is that really you jl? happy to put a face to the words.

ya that's me few yrs ago now, though..

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Saw the doc yesterday. All bloods were normal which included calcium, Fbc, autoimmune, etc. clear MRI too.

hi stella! i can help you if you think your docs are up for more detailed nutritional investigation. i can tell you which nutrients are suspect in ms, so you could rule them out or take preventative action, if you wanted to. i could also help you interpret results in a more detailed way than just normal or not. i don't have lots of background in trigeminal neuropathy, i just know what healthy people's levels are and how they differ from sick folks' levels, even though both the sick folks and the healthy ones are usually within the 'normal' range. let me know if you plan to investigate further, and i can point you in the right direction. there's lots of other reading here too, but my signature links are one route if you're interested. take care, keep us posted on how things go!

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com