Has anyone out here used this before.
After my worst exacerbation to date I had 3 days of IV solumedrol followed by a methylprednisolone dose pack. It didn't help so the next week I had three more days of IV solumedrol that didn't work then the next week I had five days of IV solumedrol. It absolutely failed to help so insurance finally covered the $34,000.00 8ml vial of acthar. I've had two injections of 1ml each so far and have three more days to go. I can't tell yet if it's working so was wondering if anyone else has taken this drug. If anyone out here has taken it will you let me know how it worked? I searched for it out here but didn't find anything about anyone taking it. Did it help? How long did it take for you to get over the exacerbation? What should I expect?