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 Post subject: Acthar gel for injection
PostPosted: Sat Jun 30, 2012 9:48 am 
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Joined: Sat Sep 22, 2007 3:00 pm
Posts: 344
Location: Lexington, KY
Has anyone out here used this before.

After my worst exacerbation to date I had 3 days of IV solumedrol followed by a methylprednisolone dose pack. It didn't help so the next week I had three more days of IV solumedrol that didn't work then the next week I had five days of IV solumedrol. It absolutely failed to help so insurance finally covered the $34,000.00 8ml vial of acthar. I've had two injections of 1ml each so far and have three more days to go. I can't tell yet if it's working so was wondering if anyone else has taken this drug. If anyone out here has taken it will you let me know how it worked? I searched for it out here but didn't find anything about anyone taking it. Did it help? How long did it take for you to get over the exacerbation? What should I expect?

Thanks.

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Marcia


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PostPosted: Sat Jun 30, 2012 7:56 pm 
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Joined: Wed Jul 27, 2005 3:00 pm
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Location: Sydney, Australia
It sounds kinda familiar, but I have no experience with it. I did a quick search and came across the following link http://www.acthar.com/mshcp/efficacy-acute-exacerbations-multiple-sclerosis
It seems to show similar results to IVMP. It sounds like your docs are trying a different tactic since the IVMP did not work. Good Luck, and let us know how you go.


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