This Is MS Multiple Sclerosis Community: Knowledge & Support

I had an MRI on Friday- I was unable to have it with contrast, because as they entered it to me, I got sick. I am evidently allergic to the stuff.... anyway, today I got a phone call from my primary doctor's nurse stating, "the MRI was a normal scan- there is a good bit of white matter on your brain, but it can be from a previous injury or your headaches. The doctor said to get another MRI in 6 to 12 months."

I responded with, "No. Please tell the doctor I can not continue this way! I am exhausted by 2 p.m., I have tingling hands and feet, I can't concentrate, can't speak right, the list goes on, and I fall almost daily now."

Would it be right for me to seek a neuro on my own, if the doctor will not? I am hoping she will get back to me with that in mind. For further info, I had my first episode 9 years ago- three weeks of barely walking at all.

welcome, fg - sorry to hear you're having a bad time. you would probably need a referral from a GP, any GP to get in with a specialist. depending on your local rules and regs. but if there's a nutritional component to what you're dealing with, i can help you with that approach. a series of nutrient tests could be telling. there are a known, well-researched set of nutritional issues that are common in ms patients, and across several chronic diseases usually seen in developed countries. if you think there's a possibility that environment (diet, nutrition, stress etc) could be playing a role, you might be interested in doing a little reading - if so check out my 'signature' links below. if you have any questions feel free to ask.

_________________
my approach: no meds so far - just balanced whole foods (partial 'paleo', much less outright elimination), science, supplements, & bloodwork
my regimen - www.thisisms.com/ftopict-2489.html
www.whfoods.com, www.nutritiondata.com

Hi, I am so sorry to hear that you are going through this. I know it can be confusing, frustrating and terrifying all at the same time. You absolutely should seek out a neuro doctor on your own if possible because they will do the proper test to diagnose you as well as rule other things out. As jimmylegs said you may need a referral. If so badger your doctor until you get one and if they don't cooperate find another general physician. I was just diagnosed with ms a month ago and I have great doctors, which really makes a difference. You don't want a doctor who makes you stressed or makes things more difficult. Stress is the number one thing to avoid. I have most likely had ms for 3 years now and every time my symptoms got bad it was because I was really stressed. I know it is difficult to not become stressed out when dealing with all of this but it really is important that you try to stay calm and relaxed. I agree with jimmylegs about the nutritional issues. A neuro will give you blood work and let you know if you have any deficiencies and you can adjust your diet accordingly. I personally have stopped eating any wheat, gluten, or dairy because they can cause inflammation (at least they do for me) which is what you are trying to avoid. A high fiber diet is also very important for people with ms. The most important thing is to find what works for you. I hope everything works out for you and goes smoothly. I am new to this myself but I hope this has helped.