I have been taking low dose naltrexone (LDN) for the past 4 years, which had halted my SPMS
However by the time i started LDN i was disabled - EDSS 6.0 at the time
Well in July 2011 i noticed it was uncomfortable sitting down, also that my legs were weaker and when in the shower felt the sore area and it just felt like a bump,
As i weight train and sometimes all on my bum, i assumed it was a sports iinjury
After a few weeks the pain subsided , so had no doubt it was just a temporary injury,
Well in May this year the soreness returned and i knew it wasnt sports related as i hadn't lifted weights for a while,
i came across a condition called Pilonidal Sinus which matched my situation perfectly:http://www.nhs.uk/conditions/Pilonidal-
- my sinus is not extreme , just a discomfort when sitting, so i bought a coccyx cushion which removed the discomfort
Since recognising this is what it was in May i have been trying all the natural remedies before resorting to the doctor which would end in antibiotics and/or surgery,
and after reading the horrible experiences in the above link when patients go the conventional route i wanted to try natural first,
so since May i have experimented with Castor oil, tea tree oil, plastering the sinus,, and a few more, but since i started removing these treatments and just keeping the sinus clean and sitting on the coccyx cushion, the sinus has gone down a lot, and there is no discomfort when sitting now
However , my bladder has become more frequent, and my legs have become a lot more weaker and walking is very bad, but the sinus is fine
So im guessing , despite the LDN protecting me, i seem to have deteriorated , which im praying is only temporary and not permanent
So i was wondering if it is common for MS patients to develop pilonidal sinus?
Also wondering if any MS 'ers here have had P.S and what treatment they had?
Did your mobility return after treatment?
- i am due to see dr in 2 weeks so will mention it then